Showing posts with label questions. Show all posts
Showing posts with label questions. Show all posts

Tuesday, November 29, 2011

some additional thoughts and questions on anger and patience

I just feel like I have to say that the anger we feel because of our children's death is, of course, justified anger, a natural element of grief. And what Cathy said, anger at evil, or child abuse, or sex trafficking, those are circumstances that should make us angry, angry enough to want to change something. But I think the important part is what we do with the anger. Cathy brought up some interesting points about justice, and I just think that releasing anger doesn't necessarily release the need to find justice. We can be compassionate and seek justice. While still understanding, at least with most personal issues between two people, there is no justice, no balance of right and wrong, because truth is a subjective, slippery object.

One thing I feel like I failed to mention is that patience is NOT ignoring. It is actually inspiring curiosity at our own intentions. Sit with the anger, become curious about it. The way we examine ourselves, our goals in confrontation and anger, our intentions in the friendship/relationship. Neither is patience a kind of endurance. While patience is slow, think of it as something like cultivating loving-kindness. You retreat until you can come to the situation with pure heart, pure loving-kindness. That is why this is a hard conversation to have when we talk about the anger of babyloss and grief. We are angry. If we practice patience in regards to grief anger, we simply can't sit with it until we are cool with it. Because we will never be cool with it. We can always dredge up our anger, I believe. We have to live with the anger and the injustice of our losses. In some ways, many of us channel that energy into something else. That is why I find my painting, my blogs, serving as editor on Glow in the Woods, being a HOPE Mentor for MISS Foundation such vitally important work for me, because I channel that anger energy into seeking some kind of justice. Not justice in her death, but justice in our lives, creating spaces to safely explore all the emotions and experiences around the death of our children. I am grateful that I had people to turn to after her death. All of you. I set my anger aside. I don't forget it. I don't ignore it. I sit with it. You witness that in this space and at Glow all the time. The other part of that experience is commenting on other blogs, and reading comments. I love you, the other grieving parents. I feel such overwhelming compassion for others who are just like me, and in that way, learn to forgive myself and the anger I feel at me that she died in me and I couldn't prevent it.


And to follow up on Monique's question: How do you express/release these emotions in a healthy way?

Monique, honestly, I have been thinking about this a ton and I think we release emotions/anger in a healthy way here in this community, by abiding and listening and venting here, and not to the object of anger. I don't know about anyone else, but for me, I used this space to honestly explore and talk about my anger. It felt safe. I did end up alienating some people in my life who saw my anger as unwarranted. Those people visited this blog and read. This space is public, and I suppose I forget that, because it just seems like it is other grieving women and men and me having a conversation. These people did not lose children. They just thought I was being unfair across the board. They didn't like who I had become. I agreed with them. I didn't like who I had become either. But I was trying to be honest with those emotions, trying to handle it in a safe way.

Anger is not a comfortable emotion to dwell in or visit. It is not comfortable for the angry person or the person near the angry person. Babylost blogs have created a safe space for anger, and I think that is a good thing. So, we write about it, we art about it. We smash things in a controlled setting, then make art about it. Generally, we do not engage in the anger with the people we are angry with. To me, that is healthy. I love what Pema Chodron says about aggression and anger--it is such an uncomfortable emotion, our psyche demands we change it, so that is why we lash out. We need it released. So sitting in anger is a rare thing for most of us. How do we accept and not act on anger? I think that is why they call it a practice, because it takes discipline and work, a second by second mindfulness to break the habit of anger and aggression.

One thing I wrote to Monique privately is that I don't think we failed at mindfulness because we were/are angry. How could we not be angry? Our children died. It is a primal emotion. It is a natural response. I think this article really deals with anger at other people, institutions, etc. I think for me the issue is misplacing the normal anger at losing my child on people who said benign, but thoughtless, crap to me, or acted in ways that normally wouldn't get me angry. Grief really twisted anger into a dangerous bedfellow for me. What feels so overwhelming about this whole line of thought and patience is the sheer work it takes to deal with every emotion until it becomes second nature to us.

The wisdom of Jill's comment is staggering. Writing down your anger and letting it sit for three days. I love the idea of an anger journal and exploring what makes you angry and if it still makes you angry three days later. My sponsor always tells me that the only response I should give when I am angry is "Oh." or "Ouch". or "I will have to think about that and get back to you on it." I call it dropping the O-bomb. When someone says something unkind, the well-placed "Oh" disarms.

Here is the other question in the comments: Um, yes. How do you pray for people who you are really angry with? Thanks

In recovery, the prayer is called the resentment prayer. I wrote a post about this about a month ago, but never published it. It was intended to be self-deprecating and funny.

I asked my sponsor the other day exactly what to do when I am supposed to pray for someone. You know, when someone hurts you and you tell everyone the situation. Other people get quiet and look like they're thinking, then they clap their hands together and say, "Pray for them." They say it like they invented the concept, and you roll your eyes, and think in your head, "Hell, no, I'm not praying for that douche." And then you remember that changing every little bit of you is about changing every little bit of you, particularly those nasty little bits you rarely admit aloud, the ones that pop in your brain and stick around like truth. But how do you bridge that place between thinking they are a douche and praying for them?

My current prayer involved me telling God exactly what a douche this person is and can you please make him see what a douche he himself is being. In my feeble brain, I somehow put together that I may be doing more self-harm than good with this sort of prayer. Praying for a douche by calling him a douche probably isn't the point. My godliness seems to be degenerating.

So, I just asked her. That is what a sponsor is there for. To guide you spiritually. To answer the questions you are too embarrassed to ask anyone else.

How do you pray for someone? What exactly do you say?
Here, she said, I will tell you exactly what to say. Get a pen and paper. Ready? God, I pray you release me from my resentment towards (blank). Please bless (blank) in whatever (blank) may be needing this day. Please give (blank) everything I want for myself. May (blank)'s life be full of health, prosperity and happiness."
That is really beautiful. 
I didn't write it, but it is and it helps. 

God, I pray you release me from my resentment towards that douche. Please bless the douche in whatever the db might be needing this day. Please give that douche everything I want for myself. May the douchebag's life be full of health, prosperity and happiness. Amen.

Wow, I do feel better.


Melissa asked this question: My heart is sore with anger and resentment, and I need a path for letting it go. At the same time, how do I do that knowing that other people are angry with me? Nobody is at complete fault, nobody is without fault. Everyone is miserable. How do we reach peace?

Man, this question nails it. The pain of that place of being angry and being an object of anger. Thank you for asking it, for sharing your experience here. I think this is the space where we can cultivate empathy and compassion since you are both angry and someone is angry with you. You can understand what your friend is going through because you are going through anger too. One piece of wisdom I have used as a mantra all weekend is this: "What other people think and feel about me is none of my business."

Letting it go is such a throw away statement, but truly letting something go is really incredibly difficult work. My approach to guilt and feeling sad because others are angry with me is to write about it in a very detailed way. I write about the incident in as much fact as possible, then I write the way it affected me, the parts of my life it affected--my security, my finances, my sexual identity, my self-esteem, my reputation. Then I write about how I played a role in the incident and what guided that behaviour--my fear? My selfishness? My inconsiderateness? And maybe none of those things apply. I then identity the kind of character defects that contributed to that behavior and I use that as a kind of mindful practice for the next day. If I was not listening to a friend and interupting or trying to posture and share my very wise insights, then I write I was being inconsiderate. I cannot change the past, but I can change my future. I then work on listening more than speaking the next day. I have to say, I pretty much write this down every day.  But there is always one change I try to incorporate into my life. In the same way, I write the ways I made a positive contribution to the situation, and if I can't find any, then I write five things I like about myself that I can use in the situation.

In this way, you can identify your own behaviour. You only can change, or control that truly. When you feel your heart is full of love, rather than anger, you can approach the person by taking responsibility for only your role in the argument/disagreement.

It was wrong of me to talk over you when you were trying to communicate such an important experience.

Whether that person gossiped about you, whether they were horrible to you, if they are mad at you for something else entirely, that is all you need to take responsibility for--the thing you have done wrong. I have done this with people who have wronged me, and wanted me to take full responsibility for more of our disagreement. I remained loving, but did not waver on what was my responsibility and what was theirs. You are absolutely right that nobody is completely at fault or nobody is without fault. We are all flawed and good people.

I often think that I did the best I could with the tools I had. We gain tools through our life. We amass wisdom. And we would probably react differently today than to the situations in our past. But we don't have that luxury. One thing that helps me to say to the other person is that I never have to be that person again, and I will move forward. Can we let go of resentment and anger? Yes. They are emotions that are not truths. They are not constants in the world. How we let go is to pray for them, even if you don't know who you are praying to, speaking about your hurt, your resentment, asking for help, even if you don't know who you are asking help from, all of those things help clarify.

I hope I got at some of the essence of your question. I found so much beauty in the struggle of what you were saying, because we have all been in that place of feeling angry and feeling bad at someone else's anger at us. What a shaming place to be.

Monday, November 28, 2011

question: anger and patience

Edited to add: This question came in the comments of this post: another post where I kill a metaphor by slow torture. In that post, I talked about how I drew lines in the sand with friends, resided in a place of anger and impatience. And how through recovery, I am learning about how detrimental anger and resentment is to my spiritual condition, and how it feeds into my spiritual malady. I also talked about patience and how I lacked patience, and am trying to work on that aspect of overcoming anger. Cathy asked me this question, and I read this question as her asking me to expand on the philosophies that led me to believe that anger is inhibiting me, and patience is a virtue I need to cultivate. Hope that makes sense. As I said in the comments on this post, I am not perfect on this. In fact, I am just about as far from perfect in this as I can be, but I am practicing letting go of anger.

From Cathy from Missouri.


I wondered if you would expand on some questions that surfaced about today's post?

What *should* make us angry in life? Anything? I can't settle in with the idea that "nothing" is a reliable answer, or that anger always = weakness. I don't think you would say that, either - wondered what your thoughts are?

What is the patience for? As in, what are we waiting for? Patience without an object doesn't seem like patience; more like denial. What about when the "patience advocates" are actually trying to deny the reality of suffering? Or is that the goal?

I hope you don't mind questions. Your posts always make me think and that's very welcome.

Cathy in Missouri 

Thank you so much for your question, Cathy. I have enjoyed thinking about this, writing about it, meditating on it.

I engage in two lines of thoughts in regards to my philosophies around anger--Buddhism and what I have learned in recovery. In recovery, anger is kind of a gateway emotion to the behaviors that keep us drinking, drugging, eating, sexing, gambling--those coping mechanisms that addicts develop to deal with normal life. In this way, "I am so angry, I need a drink to calm down." Or "You would drink too if people ticked you off the way I am ticked off." See, it is not that there is no justifable anger. But the line between justifiable and unjustifiable is barely legible. It is hard to discern, hard to recognize. In recovery, there is a line in the main book that calls anger the "dubious luxury of normal men." And it feels like that a luxury, something indulged in, something I cannot indulge in, like bourbon.

In Buddhism as in recovery, anger is a poison. Deadly and potent. A way to justify all kinds of wrong behaviour. Buddhism takes the same line of thought about anger--there is no justifiable anger. All this is being said in the same breath that I can say that anger is a natural emotion. Anger is a response to fear. Anger works in nature to defend the vulnerable animal.

"So what should make us angry in life? Anything?"

Ideally, nothing, but I don't think that is realistic. I also do not think there is one answer that fits that question. Buddhists believe that no anger is justified. That doesn't mean that anger is not a natural human response, but simply that indulging in anger is not justified. Personally, I think anger is a habit. Anger is a conditioned response, and it can be conditioned out. That certainly does not mean that we ignore anger and pretend everything is okay. Mostly, I have found in my own experience, anger is a response I barely recognize in myself. I think I am hurt and the person betrayed me. I often put it in terms of loyalty. I cry. I grow frustrated. I misplace it easily. I don't realize that my anger is there, and it comes out in being overly sensitive, overly critical, overly everything. Anger, in my experience, distorts the truth.

Which doesn't answer your question, I realize. The only way I can think to answer this is to help you recognize and dispel anger rather than tell you what I think is justifiable and non-justifiable anger. My hookable places, as Pema Chodron calls them, are different than yours and different than the next person and different than Pema Chodron's. This is where the patience comes in and what we are being patient for.

There is this saying in Buddhism: Walking in the rain is only uncomfortable if you are trying to stay dry. That is to say, any human experience is suffering if you think it is suffering. If we agree that anger is a normal response to fear and it is natural, then we need to stop punishing ourselves for feeling anger. That takes part of the suffering of anger out of the equation--the guilt of anger. It is only then that we can deal with the anger. The steps for dealing with anger are exactly what you think they are, except they are much harder than they sound. 1. Admit that you are angry. I can't think of anything more frustrating than talking to someone who is clearly angry and keeps denying their own anger. Maybe more frustrating is talking yourself out of your own anger, and having someone continually tell you you are angry. Can you allow yourself the space for anger? Can you honestly assess anger and work towards its elimination? There is the key to dealing with anger. 2. Identify why you are angry. I find most of my anger comes from a fear of not being loved, but that is just me. 3. Cultivate patience.

Patience means waiting out your own anger. You restrain yourself and your responses, because anger comes out in every word you speak to the person. Pema Chodron writes about anger and patience, "Patience means getting smart: you stop and wait. You also have to shut up, because if you say anything it’s going to come out aggressive, even if you say, 'I love you.'"

That is true, no? You can tell when someone is angry with you by their tone of voice. The part of anger that makes it so indulgent and difficult to channel into love is that anger is such intense suffering. It is a ball of differing emotions--aggression, betrayal, hurt, loss, pain, resentment, fear, irritation. It grows the more you feed it and it becomes a planet that has its own gravitational pull. It sucks other emotions into it. In that way, anger demands resolution. You just want to stop your pain and suffering. We scream and yell, or even calmly explain why the other person is wrong and you are right. But the way we resolve issues in anger does not help the situation; it escalates suffering. Patience is the way out.  Patience isn't to deny the anger or suppress it, but to call the thing by its proper name. This is what humility is to me--taking ourselves right where we are. The good, the bad, the ugly.

Patience isn't just waiting--it is fearless waiting. It is reacting internally rather than externally. It is listening. It is breathing. That is scary to our egos--to hear someone's grievances with us, or hateful words, or watch their wrong actions, and sit silently with them, not indulging in the drama, not being right. It is setting a goal to your anger--to stop your suffering and the suffering of others--while understanding that there is no resolution to suffering and anger. Do you understand that? Patience advocates (in Buddhism, at least) are not trying to deny the suffering, but to acknowledge, understand and cease the continuation of suffering.

I am going to stop here and just mention that the goal is to cultivate a loving-kindness with all sentient beings. That is always the goal. The caveat is not "except for those people with whom you are angry." Christians counsel to pray for the people you are angry for*, Buddhists counsel the same thing, to approach each person with loving-kindness. To share your compassion, to want to literally remove their suffering and take it on ourselves.



This really leaves us with nothing. We can never be "right", right? Right. You can be right or happy. Because indulging in that anger, fighting, trying to convince, change, cajole...where does this lead us? To more suffering. When we leave an argument where we "won", the other person is hurt, sad, rejected and dejected. Have we truly won? Patience is a way to diffuse yourself, to react in a way that is going to help alleviate suffering rather than create more. So, what do we do with all this self-knowledge after looking at our own anger and suffering? We let it go.

Easier said than done. I have such a hard time letting shit go. I open my hands to let go of the reins, and I realize I had been holding so long and so tightly, that the rope are burned into my skin. So, we do it  little by little. We let go of our need to argue, first. We let go of wanting to be right. We let go of the importance of our anger. We let go. And we will indulge in anger. We will confront people even when we know this, we are human. But we will try next time to walk away if we cannot sit in silence. To ask for twenty-four hours to respond to confrontation. We set boundaries so we do not have to indulge in anger. And that means the practice of patience is also patience with ourselves. Patience with our own humanity.

I hope this sheds some light on this topic in my life and my approach to anger, which is a new thing. I should say, it is a practice I have focused on in the last eleven months of sobriety. I didn't realize how full of anger and resentment I was before. Seeing that in my has really forced me to understand and confront those anger demons. As always, I love answering questions about Buddhism, grief, sobriety, parenting, mindful parenting, loss, art, religion (I love religion questions) and everything in between. I like riffing on topics other people pick, if I have to be honest. Anyway, you can leave them in comments or send me an email at uberangie(at)gmail(dot)com. I can also clarify any of this and welcome any Buddhist or AAer to clarify their understanding of these topics.



* I actually wrote a post about exactly how you pray for people with whom you are angry. I can publish it, if anyone is interested. 


I consulted this article by Pema Chodron called The Answer to Anger and Aggression is Patience. I read it a few months ago when I was journaling about my own anger and resentment and read it again before writing this post. It is worth the read if you are interested in this topic.

Sunday, November 20, 2011

question: grieving openly around children

This question is from my lovely friend MA who would like to remain mostly anonymous: 

Do you think it is bad to grieve openly around our kids, or not to do it at all? Do you think they are growing up with a sort of ..shadow? I know I always, every day, miss my brother who was my mother's first child and stillborn. My mother only talked about him twice, and I don't know anything other than his name and that he is dead. And I have felt an intense sadness all my life. Is being open about it a better idea? Or worse?


Thank you for this question. I just want to express my condolences. I have known you for four years now, and I did not know you lost a brother in this way, like my own child. I imagine that growing up in this way was confusing--to feel grief and not understand it.

This question was sent to me a month ago and initially, I thought I had heaps to say about it, then I kept staring at it, turning my head, re-reading it. If it were a three-dimensional object, I would have taken it up, spun it around, held it, studied it. I would have allowed the weight of it to sink into my arms. I would have made notes on it. I would have seen it is a loaded question for me, and not coincidentally, issues I have been thinking about lately in regards to my own life. So, I am grateful to visit this topic. Thank you, love.

The truth is I don't know what is bad or good, what is better or worse, but I can only tell you what my philosophy is and what approach I am using with my children and what I experienced coming up. I have written about this here, about raising my children with a dead sister. I'm sure my views will evolve and change. One noticeable change is that the immediacy I once felt to connect them to Lucia is diminishing. Not that I don't want them to develop a relationship with her and grieve for the loss they experienced, but I don't want to force them to grieve. I want to give them the space to come to those questions on their own timeline, and not force them to love and grieve Lucy the way I do. I include Lucia where it seems appropriate. I will always stop any conversation, event, daily routine to answer questions or talk about grief with my children, and to allow them the emotional space to feel sad and to miss. Lucy is my child. I never deny her to my children.

You asked me if they are growing up with a sort of shadow. And I think yes, of course. My husband and I have a shadow too. We lost a child, and that is never really gone no matter how much we acknowledge Lucia and integrate her into our lives. That shadow is our grief. It is the space where we imagined a daughter, where she fit into our family, where she is not. The depth, breadth, weight, height of our girl is simply a darkness. We will always see it. We will always grieve. It is okay. We grieve because we love her so damned much.

I grieved and still grieve openly in front of my children. The early months of my grief were so powerful that I couldn't contain it if I had wanted. I couldn't have grieved entirely separately from Beatrice, even if I wanted to, though often I did grieve alone and away from everyone. I just had to pay attention to grief. It demanded everything of me. Yet the equally demanding nature of having a twenty month old, for that is how old Beatrice was when Lucia died, meant that I was very present most of the time with her. It is not that I didn't feel that claustrophobic grief perched, talons deep into my flesh, on my chest, constantly pecking at my heart all day, but rather, I just did what I had to do, because a twenty-month old needs to eat whether her sister is dead or not.

There were times when crying overtook me while I toasted bread and spread butter on it for Beezus. I sat uneating, head cocked, watching her take her small sparrow-like bites and tears fell in spite of myself. But in general, I used Beezus as a way to hold those emotions at bay and just remain in the moment. My inner dialogue mostly was like this:

Take out bread. Put it in the toaster. Lucy is dead. Holy shit, Lucy is dead. Why isn't this toast popping? Lucy is dead. Bread pops. Pull out bread. Butter toast. Cut it up into squares. Lucy is dead. Put it on plate. Call Beezus to the table. Grab her put her in the chair. Listen to her voice. It is a bell. Her voice is angellic. What would Lucy's voice sound like? I am weeping uncontrollably. Stop crying. Lucy is dead. Baby Bea is eating. She is eating. She is alive. She is so cute. "You are so cute, Beezus. Give mama kisses. YAY, butter kisses." She is perfect. So was Lucy. Lucy is dead.

But mostly, when Beatrice went to bed, I broke down. I screamed and howled. I cried and wrote Lucia's name a thousands of times in a notebook. I allowed myself to feel the full weight of the grief that I had been carrying. I allowed it to crush me and to cry about it.

So, did I grieve openly? I did. Did I really grieve openly? I didn't.

I did not and do not now express all the emotions I feel around my children. And I don't think any adult should. Not joy, or grief, or anger or lust, or...do you get what I am saying? My children are young, and their emotional understanding is limited, so I don't put all those heavy adult emotions on them. I don't scream at the top of my lungs when I am angry. I very often pause and breathe deeply, because that is what we do as parents. And I shake off the immediacy of the anger. We rein in our emotions and parent. It is the same with grief. It is particularly difficult with grief because grief is like the hobo train hopper of emotions--it comes in the form of sadness and anger and guilt and jealousy and apathy and all those emotions we misplace. So, it is particularly difficult not to scream at a two year old for very normal two year old behaviour in the early months of grief. But we cannot succumb to those impulses, no matter how urgent they feel. Anger is a normal, healthy response to something that scares us, but what we do with it defines us.

In my childhood, I didn't see my mother (or father) cry until I was well into my twenties. It was a weakness in our house to cry or express any negative emotion, like anger or jealousy. Emotions were not encouraged. If you feel angry, there is something wrong with you. I grew very ashamed of my very normal emotional responses. My parents taught me that you suck it up. The effect of that has permeated and deleteriously affected every aspect of my life. Swallowing my emotions did not teach me that there weren't problems, or that my parents weren't depressed, it just taught me that emotions were weakness. That I was supposed to be different, or special, or superhuman. It was a kind of terminal uniqueness--death by being special and a-emotional.You suck it up and drink. I have learned through coming to a point of acceptance in my alcoholism that I either have to spit it out or drink it down. Lucy's death was the catalyst for my sobriety and for really looking at my approach to my emotional well-being. I could no longer stuff the grief and negative emotions into the deep recesses of my body where they were allowed to create a rotted out hole in me. I could not hide the crying, or the emotions. I couldn't ignore the very demanding emotional rigors of my daughter's death. And I had been taught throughout my entire life that the emotions I was feeling were weak, pathetic, unbecoming, and downright wrong. Today, I understand that I don't have to live with shame on top of grief.

So, I am trying teach my children that all emotions are okay, but what we do with them defines our character. Being able to express themselves and have the emotional intelligence to understand what they are going through, I think, will be a gift to them. To see their parents experience their emotions in a healthy way, i.e. grieve and cry and light a candle, rather than get loaded and pass out on the couch, hopefully will help them when they face the grief they will feel about Lucy's death. One thing I have learned in recovery is that just because I feel something doesn't mean I have to act on that feeling. Feelings change. But actions remain permanent.

Have you every seen that book Everyone Poops? I tell my children this: Everyone poops and everyone cries, though they usually don't poop and cry at the same time. I think seeing their mother and father cry might make them both more compassionate adults, give her the permission to be true to her emotions that I didn't have. At least that is what I am hoping. What do you think?


For Cathy from Missouri, I am going to be answering your incredibly beautiful comment/question from this post tomorrow. Thank you for asking it. And as always, I am always willing to wax and muse on any questions you might have about religion, parenting, sobriety, kids, crafts, arts and anything else. I read a lot, so there is that too. You can email me at uberangie(at)gmail(dot)com.

Monday, September 12, 2011

questions thirteen through fifteen: gurus, relationships and remembering.

Nerissa: Do you ever feel like a babyloss/grief guru? Not like you are an expert or you are totally enlightened about it all. More like, people (like me) come to you and seek your advice, even though it's not necessarily advice that you give so you are like a guru... Do you know what I mean? Are you ever overwhelmed at how many people share their stories with you and come to you in such a desperate time in their lives?

Thank you for that question, even though it feels a little weird to answer. Okay, firstly, no, I never feel like a babyloss or grief guru. I am just a mother who lost a child. I like to write. I like to connect with other people. And I majored in religion at university. I did that because I have always been seeking the answers to really large questions about the universe, God and human nature. Losing my child made me question everything I believe in and everything anyone else believes in. It also strengthened some really fundamental understandings of the world. I work those things out in a public place like Glow in the Woods and my blog because I crave discussions about these aspects of our losses and grief, so I never ever feel like I am lecturing, I always feel like I am having a conversation.

But more to your point, no. I am never overwhelmed with people sharing their stories with me. I always feel privileged and honored to be trusted with someone’s story and baby. I never take it lightly, but I also don’t feel weighted down or saddened by it, necessarily. If that makes sense. People ask me, particularly people not in this community, if it depresses me to hear about losses and grief. No, it doesn’t depress me. Maybe it is because I see grief as another expression of love. I am always amazed by the strength, compassion and love of the men and women I meet along this journey. Most of the time grieving parents ask me about Lucy as much as tell me about their baby. It was a surprise of talking to people freshly in this community. That is compassion and generosity. At someone's worst moment, people seek to listen and comfort as much as to be heard and seek comforting. And you are right, I just share my experience. I am always amazed at the wisdom of newly bereaved women and men. Their insights usually help me process some aspect of my own grief and experience.

When I first came into this community, I wrote to people a few months out from me, or years.  And I sought refuge in blogs and other women's writings. I also tapped into the community at LFCA and connected with other women in other experiences around pregnancy loss, like infertility or secondary infertility or recurrent miscarriage, but I focused on clicking, (sending stories to LFCA) with Jen about stillbirth and neonatal loss. Truly, being compassionate to another human being in the same situation as me helped and helps me understand and forgive myself for my daughter’s death and make peace with the decisions I have made along the way. They have not all been good decisions or healthy ones, but seeing someone else in their vulnerability and early grief helps me process where I was. If that makes sense. And to understand that I did the best that I could.



Cullen's Blessings (Leslie): How do you keep Lucy's memory alive for Bea and Thor? What did you do on the first anniversary of Lucy's death?

Thank you for your question, Leslie. I sort of answered this question earlier, but I will touch on it again.

The short answer is that I just talk about her, like I would anyone in our family who died. I don't harp on her, or bring her up continually, but I just bring her in naturally. Sometimes I tell the kids, "You have the same nose as Lucy did." And Thomas does. Beezus is starting to grieve her, because she is starting to realize what death means and that she had a sister. She really talks a lot now about sisters. When she asks me a question about death or Lucy, I just am honest. We do have a place where we light a candle and some incense or sage, the warmth and light from that candle feels like a presence in our space. I do it when I miss her, or just want to remember her. Sometimes the children collect things for Lucy's altar. All in all, we try to make it as non-weird as possible.

Lately, Beezus has been singing this song around the house. She is at an age where she makes up songs, and it goes "Fly, Butterfly, fly." Over and over. Sometimes the fly is float ("Float, Butterfly, float.") I asked her about the song, where she heard it, and she told me that she made it up. She sings it whenever she misses Lucy. I never associated Lucy with butterflies or anything, but Beezus made that connection for herself. I told her that when I see ladybugs I think of Lucy. So sometimes, when she is singing the song, that gives me an opening to ask her if she is missing Lucy and talk about how we hold the ones we love after they die. I also read When Dinosaurs Die if she has questions that are hard for me to answer..

We had a very low-key day on Lucy's first death/birthday. We napped and went out for sushi on her first birthday, because that is what we did for everyone's birthday back then. I cried often. I took a bath. Lucia died on December 21st, was born December 22nd, so three days before Christmas. I wish I could say that I have something set to do every year, but I suspect it will change every year. The first birthday seemed so important, I couldn't figure out what to do. I thought about it a ton, actually. I bought candles to light, wrote poems to read, and I did none of it, because it didn't feel right.

Because she died on Winter Solstice, last year we did some solstice-y type things, like light a candle for each window through the house. And say a poem for Santka Lucia. Talk about the lightness and dark. We ate a feast. Last year was also an eclipse, so my sister and I went out in the middle of the night and watched the eclipse in sleeping bags. That feels right and good to stay up all night, light a bonfire, and honor the seasons of change.  So, I think those rituals are going to stay in place now. I try not to worry about setting up something forever. I just do what feels right in the year and place we are all at. Beezus really wanted me to make a cake for Lucia last year. I am not a baker. But I did make cupcakes for her.

I hope that helps. I'd love to hear what other people do or did.



Ines: What's it like to be on the other side of the fence - of babyloss and sub-pregnancy and parenting after loss or through loss dealing - one side and the other side - with women who suffered loss of motherhood alltogether with their loss who have wanted a child or children and can't or don't get to? Do you feel the divide? Have you lost "friends" who "unfriended" or un-followed you? How do you feel about that? Would there be anything you want these women to know or would there be something you would do differently in retrospect? How do you feel about the question? Have I forfeit my chance to win -the gnome book? :-P I loved that book when I was a child and miss it like crazy just seeing the front page on the link you posted.

Ines, it is never too late for a good question, though I did pick a book winner last week. Maybe the gnomes will find their way to Ireland. Thank you for asking it, though I actually think this may be the most difficult question for me to answer. I don't want to sound like an asshole, and yet I also want to be honest. I am walking the razor's edge on this question, so I will try to be as honest as possible with as much love as possible.

I don't think of myself as now on the other side of any fence, honestly. I had a living child when my second child died, so for many people, my experience of loss was already different than their experience losing their first child. So, if there is a fence, I was already on the other side of it. When I began writing, I wrote this blog to process how to parent one child while grieving another. To have an outlet to write about grief and suffering and my religious ramblings and parenting a toddler and everything else in between. Also, I began writing to become part of a community and to connect with other women who were also grieving. And so both Beatrice and Lucia were part of what I imagined I would talk about here. I have never sold a bill of goods that was different than simply my life--all my children and all my parenting and all my experience. The joy and the grief. Perhaps that in and of itself was enough of a reason to not read my blog, or have a reason to identify out of my experience of grief for some people. After Thomas Harry was born, perhaps that divide grew larger, the wall between me and people who lost their only children absolutely impervious.

And that is absolutely fine. Do I feel the divide? No, not particularly. I see us all as grieving parents. And yet, I acknowledge that my experience is different from someone grieving infertility, the loss of motherhood, or recurrent miscarriage. It is an entire added level of grief I don't experience. There are very few people in this community whose experience is exactly like mine. I ache for my friends who want children and, through no fault of their own, struggle with conceiving, the grief of losing children or not getting pregnant at all, the loss of motherhood and their kids and the complex emotions of relating to people who they genuinely like who have living children. I cry with them. I root for them. I try to remain present with them. But I don't know what that is like. Any distance they need physically or emotionally doesn't stop me from loving them fully. I guess what I am trying to say is: I don't take it personally if someone can't be my friend, or read my blog. I want them to be happy and find comfort wherever it is and in whatever form it comes.

Have I lost friends, lost readers with the birth of my third child? I would be surprised if I didn't. I don't catalogue readers or followers. I don't know how many followers I have. I don't know who unfriended me, or who didn't. If you hold a resentment against me, I don't really know about it. (You can email me about it, though.) I think that it is absolutely natural to grow out of blogs, or move on from a blog writer. People cycle through blogs according to what they are going through and what they need. It never offends me when and if someone doesn't read a post I write, or stops reading my blog all together. It doesn't hurt my feelings when a post gets no comments. I am a writer. I am used to rejection, edits, rewrites and insults.

In the beginning, I did care. I wanted to know who read what, if my friends or family were stopping by, and then who were the grieving women coming to visit. I worried about what I wrote and how people took it. I started different blogs for different parts of my life. I tried to control your experience of my writing and my life based on what I imagined would be hard for you if you were going through infertility as well as loss. Then I just felt kind of started feeling funny about that.

I got to a place, and maybe that place I got to coincided with me getting sober and being more honest about my suffering and where I am in my life, but I got to a place where I felt like the reader needs to be responsible for his or her own experiences in the world. I cannot protect the reader from my life. I cannot guess what is and isn't hard to read. I cannot underestimate my reader's emotional ability to handle my happiness or my grief or my daily life. That is fucking insulting of me. How presumptuous of me. How arrogant. Now I work under the premise that people will stop reading if they don't like what they read. I think self-preservation should be the foremost guiding principle of what anyone reads. If a blog hurts to read it, stop. I certainly stop reading blogs, then I pick them up again, then put them down again. I also read blogs of people who have a different experience than mine. I read a lot of blogs of women who suffer through infertility as well as loss. I read blogs written by drunks and addicts. I read blogs of writers and artists.  I read blogs of architects and I have never built a house in my life.

You know what? There is also a whole other set of readers, people who have never lost a child, who can't relate to this blog from top to bottom. But I relate to those people in every day life outside of my blog. I talk to them. I laugh with them. I share experiences. Listen, what I am trying to say is that I am not three people. I am one person who parents living children, who is an artist and writer, who birthed a stillborn child, who rides bike, who is a wife and sister and daughter, who is a Buddhist and a Catholic. I'd love to combine all those parts of me into this blog. I am doing that gradually. I don't know. This space is confusing to me too. I don't know how to be here all the time. I am still figuring it out. I hope that if I lose readers, I don't lose friends.

So, what do I think I would have done differently? I don't think I would have ever split my blog into my everyday art blog and still life with circles. I want them all to be the same blog. I would have just been more authentic about this experience of grief being part of my life, a simultaneous experience with joy. I wish I would have written about my spiritual wrestlings a tad more frequently, because I think people go through that too. So, I guess I would have stopped worrying about who is reading here a long time ago and just been myself.

You asked me, Ines, "Would there be anything you want these women to know or would there be something you would do differently in retrospect? How do you feel about the question?"

To be frank, this question makes me feel like I am missing something. Did I offend these women? Did I upset them with the birth of my child? Did I upset them with something I wrote? I don't know. I understand if it is hard to read about my children. I understand. No one needs my blessing to not read in this space, but if you want to know if I will still be friends with you even if you cannot be present with my parenting posts, absolutely. It is important, drastically important, to protect your heart. So I would say the same thing I always say.

I love you. Go if you need to go. Come back if you want to come back. I will always be here with open arms. Loving you. Email me privately and we can have a friendship separate from my blog. I will always be here for you in whatever way you need me to be.

Ironically, as I was writing this post, my arm was resting on some papers. I picked them up to move them, and a postcard from please be still fell out of the pile that said, "We Are All Connected." Suffering is suffering is suffering. Grieving is grieving is grieving. Love is love is love. We grieve for different things, but we grieve. I think it is a universal form of suffering that every person can relate to, even if they haven't lost a child, or they lost their only child.

If you want to clarify the question, I would be happy to be more specific if it relates directly to something I did at some point in time. Otherwise, thank you to everyone who asked me questions this month. I love answering questions because it helps me to clarify these things in me, and it helps direct my writing when I am feeling scattered and unsure of myself, and I have been feeling scattered and unsure of myself. I hope everyone writes on these topics and links to their blogs. Much love to all of you.





Friday, September 9, 2011

question twelve: spirituality

I'm going to take these questions individually as they are all sides of the same cube, but all have different perspectives.

FireflyForever: So, where are you at spiritually? I have always admired your willingness to engage with issues of faith faith/spirituality/religion and baby death. I have deliberately avoided raising it on my blog as I'm too confused and scared by it all. Interested to hear your perspective. 

Thank you.

I try to talk about spirituality in the way that I learned to talk about it while pursuing my degree, so I am just going to talk a little about that before I answer this question.

I studied Religion at university. In the Religion Department, one often clarifies the area of expertise in this way: In theology, people study what God thinks about people. In religion, we study what people think about God. It is an area of study fairly devoid of preaching or God talk, even though, ostensibly, all we talk about is God. By that, I mean, most people engage in talking about history, psychology, sociology, archaeology, philosophical and theological theories surrounding religions, but disengage in talking about why you, the listener, need to be of that certain religion. Most often, you hope to have no idea to which faith people adhere by reading their work, or listening to them talk.

I learned much in the way of religious practices by just going to services, listening, praying with other people. I have not been to a religious service that I don't think is beautiful. There is a continuum of compassion and love that runs through most religions that strikes deep within me. I guess that makes me a kind o f pluralist--someone who sees all religions as different paths to the same place.

ANYWAY, my point is a kind of disclaimer on this post to keep this in mind in the comment section of this post, because I hope others share where they are at spiritually too. People have a strong tendency when discussing religion to compare the ideal with the real and vice versa. For example, one might say, "In my religion's sacred text, we believe that killing is wrong, but this other religion's peoples are always murdering each other." Of course, in both religions, murder is more than likely a sin. The former is the ideal, the latter is the real. When you compare their ideal, i.e., their model of living and their sacred texts with the real, i.e., people are flawed and sin, you have an unfair discussion. So, please don't do that here. Be kind, dammit. If you are abusive, I will erase your comment.

At any rate, I can give you a fair overview of most of the major religions, an in-depth theological and sociological overview of a few smaller religions, and do an Idiot's Guide quickie for most of the rest of them. Of course, there are some 200 Protestant sects in the United States, of which most I am fairly ignorant. I am a bore to be around most of the time, especially when listening to NPR or something. Unless, that is, you are interested in the obscure practices of the snake handlers of Appalachia, or the differences between Sunni and Shiite, then I am a fucking hoot.

I guess what I am trying to say is that I think when it comes to religion, I intellectualize it a little too much. I understand why they do this piece of the ritual this certain way, but I never really understood faith. It cannot be explicated, diagrammed, or argued, you must simply feel the Divine, and I just never really understood how to do that before. I respect religion and faith deeply. I have wrestled with religion, which I always thought meant that I wrestled with my spirituality. I see religion and spirituality now as two very distinct things. I always had my spirituality. It has morphed and changed based on where I am in life, but it was always there. I think questioning one's beliefs is the very essence of faith. Faith implied by its very definition, that it is not knowledge, but rather a kind of confidence in the unknown. Some of the greatest pieces of philosophical and religious writings I have read have been men of the cloth wrestling with their faith.

I think that this particular point in my life, I am most at peace at where I am spiritually. Maybe because I am finally confident that I know nothing. I am confident in the unknown, that is, I am confident that there is something out there. I don't know what it is. But I do believe in God. I began praying again in the beginning of the year, refinding that belief in a Creator. I also began meditating every day, rather than whenever I felt insane. But I think the best way to describe it is that for the first time in my life, I am allowing myself to believe without having to understand everything. And to really pray, not asking for things, but to ask God to point me in the direction of the Greater Good, to help others first, before I help myself, to understand before being understood, help me find serenity and peace in how I deal with other people and myself.

I am asking for help. I have problems asking for help, so I started asking God first. I am just learning how to trust again. And to believe again, and I'm still not positive I am doing it well. Here is the thing about where I am with my spirituality. I just don't have to figure all of it out right now. I don't have to find the one right religion or way of being. For me, trying to find that one right religion stymied me from practicing anything spiritual, from praying, meditating, any of it. It was like a black or white issue for me. I either have to believe in everything and convert to a religion, or I can believe in nothing. I used this line often, "I respect religion too much to not believe in everything." And yet, doing nothing is not honoring myself or God. It was a way for me to justify my selfish behavior.

Now, I pray without a religious agenda. I meditate for peace rather than to see if I can sit longer than anyone else. I honor the seasonal changes with my family, because the mystery and awe and power of nature humbles me, and that seems important to honor. There is a spirituality there for me. The other part of my spirituality is just trying to alleviate suffering, to help someone else, to put other before me without being a doormat, to find the action that causes the greatest good for the world and doing it. I'm not sure I am making sense, but that is my convoluted way of saying--I'm at a good place, spiritually, because I stopped trying to be perfect at spirituality. I just started being.


J: I think I'd like to springboard off the previous comment. Did the loss of Lucy alter your spiritual beliefs at all? I think, in my instance, people almost expect me to now have some greater spiritual understanding and to have all the answers to everything when I'm still questioning and seeking and not really much different than I was before C. entered our lives. My reflections on spiritual aspects on C.s blog are an indication of that--all over the place really, possibilities with no concrete answers. 

I would say that early in my grief, I really was not sure what I believed. And like you, I am still all over the place with no concrete answers. In the beginning, though, I was angry that my daughter died, but I didn't blame God. Even though I wasn't sure what I believed about God, I never thought God controlled who lives and who dies. My feeling now is that God was crying with me rather than punishing me. I was angry at people who used God to make themselves feel better about my daughter's death. Many of those people came from my religious background--Catholicism. I couldn't bear hearing platitudes. On the other hand, I have been studying Buddhism for a long time, and I was disturbed by the idea of karma and what I might have done to deserve the death of my daughter. Until I started asking Buddhists (my therapist and my friend Kitt) and came to understand that concept a little more in depth.

When Lucy died, I had this incredible spiritual experience of feeling connected to all people who suffer. It was overwhelming and powerful, and, well, Divine. I was possibly totally insane, but I felt like I could see people's suffering. Like they embodied their suffering, so they stopped being egos, but a conglomeration of their pain. It didn't last long, but it was a hard, yet spiritually powerful, way of seeing the world and others. When that went, I felt like my spirituality died for a long time. My therapist at the time said, "So you lost your daughter and your enlightenment?"

And that is how it felt, like the light of my daughter and the light of spirituality had both been extinguished. (I wrote about it on Glow a few months ago.)

Now, as I wrote above, I am not trying to figure out what I believe so much. I am praying every day, meditating every day. I believe in God, but I am not trying to figure out which God, or reconcile the contradictions in the Bible or in God's existence with the existence of suffering. I am just believing in a loving God, one that guides us to helping others. Because I have begun to let go of the expectations of my intellect, I feel more connected spiritually, more grounded. That is what I missed after she died, a feeling of groundedness.

I hope that made a modicum of sense.


Amy: Hi Angie, I think a discussion I would love to have with you and hear your thoughts on is the idea of "Belief". I have been struggling with this word, notion and idea for some time and it becomes more difficult as the days go on. I feel resentful toward Belief. I bristle against it's sound. I feel inadequate in it's presents. Foolish for having believed in the past yet unable to forgive myself for doing so. It is an emotionally charged word. The word has become black and white in it's meaning, leaving no room for elasticity or fluidity in definition. Somehow I've cornered this word into being the purest of pure of tight lines to walk. I struggle to soften it's edges and redefine what Belief means to me. And this is not just about Belief in some God or Goddess, this is Belief as a whole. I'm stuck on this so your perspective will be interesting for me to hear. Thanks so much! 

What an amazing question, so beautifully honest in the way you articulated it too. So, thank you, Amy.

I am not very good discussing belief, honestly. I think truth is largely subjective. Maybe because of what I wrote above. I tend to intellectualize everything. There are very few empirical truths in my experience. Yes, science and nature, there are some empirical truths that we point to, but even things like atoms I take on faith. I cannot see them. I cannot feel them. I cannot even really visualize them, and yet, I trust science enough to believe they exist.

Belief is such an emotional, intuitive thing. And I think, by reading your question, you might mean believing in hope. Or believing in anything not concrete. For me too, it has been a long journey for me to get to a place where I can say I believe in anything, really. I think it is an issue of control for me. Or the illusion of control. Giving up the illusion of control that I have clung to for so long. Now that I am in recovery, there is a focus on not having control over anything. You are powerless over alcohol. You are powerless over everything. And in some ways, that powerlessness leaves only belief.

Sometimes when I was pregnant with Thor, I would think, "I must have believed I was capable of having a living child, because I would never have tried to get pregnant just to birth another dead child, would I?" And so, that is where I start with belief. A nugget of hope somewhere that this, all of this, is not for naught. I get logical about belief, which is to convince myself that I "believe" many things, and "believe" in many things. I believe in them so fiercely that they have become a kind of empirical truth. I believe that eating organic food is better for my children, for example, even though I can't see the effects. I believe that people are inherently good, even though men murder other men. I believe that when the ground is wet, it had rained overnight, even though I didn't hear the rain, or see it. And so, there are a lot of things I believe in.

I guess by believing in those things, it opens me up to have hope. And hope is the beginning of faith. But I don't believe that the greater good always prevails. We suffer as human. How and what we suffer is random and chaotic, and that seems utterly cruel. That fact makes it hard to believe in anything, for me personally, except I do. I must. Let's put it this way--believe it will work out or believe that it won't work out won't change the outcome, in my opinion. I don't subscribe the positive thinking-changes-the-world philosophy that is floating around these days. But I find that my life is less oppressive if I believe that I can only worry about my own actions. That magical thinking won't change the end, but real action does. So, I believe. I kind of try to live the Serenity Prayer in my life these days--God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference. I trust that the actions I am taking are for the greater good. And in that trust, I guess there is ultimately optimism, trust and in the end, belief.

As you can see by this confusing answer, I wrestle. When I first got into recovery, someone shared what is called the Eleventh Step Prayer with me, and I have never heard or read anything that encapsulated my beliefs so entirely. I later found out that this is actually the Prayer of St. Francis of Assisi, or rather it is dedicated to him.

I think for me this is what belief is. Belief is the trust that the journey is the important part. That my actions are all that I should be concerned about. That all I can do is act and work for others. That trust is the only nugget of truth I need. Trust that by tapping into the Greater Good, the good I know as my conscience or my moral compass, I am believing in something outside of me. I am not in control--call that Mother Nature, God, the universe, or Chaos, both upper and lower case C in chaos, or maybe simply, believing in other people.

I'm not sure I made much sense, but the Prayer of St. Francis of Assisi is below. I'd really love to hear your answers to these questions. I am going to put a Mr. Linky up so you can write about them on your own blog if the comments seem to confining. But I also think it would be awesome to have a conversation in the comment section too. Thank you for these incredible questions.

Prayer of St. Francis of Assisi.
Lord, make me a channel of thy peace 
- that where there is hatred, I may bring love 
- that where there is wrong, I may bring the spirit of forgiveness 
- that where there is discord, I may bring harmony 
- that where there is error, I may bring truth 
- that where there is doubt, I may bring faith 
- that where there is despair, I may bring hope 
- that where there are shadows, I may bring light.
- that where there is sadness, I may bring joy

- Lord, grant that I may seek rather to comfort, than to be comforted 
- to understand, than to be understood
- to love, than to be loved. 

For it is by self-forgetting that one finds. 
It is by forgiving that one is forgiven. 
It is by dying that one awakens to Eternal Life. 
Amen. 

Wednesday, September 7, 2011

question eleven. creativity

Sara: You do a lot of creative stuff. How/when do you get it done with two little kids around? 

Hope's Mama: How do you find the time and motivation to keep up with all you do, especially online. You maintain a handful of blogs, all very well, and you post very frequently. And when you are posting, you're often talking about all the things you're doing when you're not online - crafting, cooking etc etc! Just wonder how on earth you fit it all in, and do you ever get any time just for you? How does Angie unwind and rejuvenate herself? xo 

Great questions, Sara and Sally. Thank you for asking them.

The most basic answer I can give is that I just do it. One thing I have learned in the last few years is to simply prioritize creativity. I have woven art and writing into the fabric of our daily life. I prioritize it with my kids and I prioritize it alone. So when I start making commitments for our family, I definitely think art or writing as part of our schedule. And I have to say that art and writing also means that I prioritize me and my mental health, because I also unwind and rejuvenate with art and writing. That is something that used to feel selfish, but now I see as a vital part of my mental well-being. That is a huge change in who I was--to do something solely for the sake of doing it without regard for being paid--I used to judge my worth on how much money I made.

I am incredibly fortunate to be married to someone who supports my art and writing habits in any way he can. He also works forty-four hours a week in three days--one twenty-four hour shift and two ten hour shifts. It affords us lots of time together as a family and gives me the space to do art and writing. In those forty-four hours of him being at work, I try to be really present with the kids. But when my husband gets home, he also wants to spend time with them, bonding and doing the stuff he loves with them --wrestling, building forts, running, climbing high things, hanging from the ceiling and flipping around. So, he likes the hour or two alone with them if I work where I am not freaking out and telling him they are going to break their necks.

Less formal, more personal art, craft or cooking for our home, I tend to do with the kids--either I set the kids up with a creative project of their own, or get them involved in some way. That took a lot of discipline for me, because I am impatient. But now, I am used to kid-pace and I like it. They slow me down and that is good. When I have jizos and do meditation paintings or something from my Etsy shop, I wait for Sam to be home and take the time to close the door and not answer the phone. I cannot do meditation paintings with the kids coming in every few minutes. In general, I would say that it is a mix between formal, set-aside art time and just doing art and writing whenever I can. When I add it up at the end of the week, generally, it is quite a bit of time.

I always want to be writing or painting. Usually both. It is a constant gnawing at me. If I could sit at the computer and write from the time I wake until I go to bed, I would. I write sentences, ideas, phrases, paragraphs throughout the day. I am always thinking about art and writing, so I have about fifteen windows open on my computer at any given time. When something hits me, I go back into the office, wake the computer and just add those lines to the file I am working on. I also have a few files on my smart phone and write ideas on there. So, I have a ton of three line pieces in my "In Progress" file that may or may not become something some day.

Creativity--art and writing--brought me a peace. It was a way of being right in the moment in a way that was absolutely impossible for me after Lucy died. It was like meditation. Hell, it was meditation. It still is meditation for me. Meditation for the addled, grief-fried brain who cannot sit still. Others find their thing--knitting, baking, running...that is why I set up still life 365, because I knew other grief-stricken parents were doing something too, something for a moment of peace, and I found their moment beautiful.

That was probably too much information, but suffice to say, I have alone time to do art, blogging, writing, crafts, which is important. I am motivated to do it, because it brings me such a sense of wholeness and calm. When the kids go to sleep, I write. I don't always want to, but I know if I start, I will get into a zone. I believe in my writing in a way that I never did before. Not that I am a great writer, but that something will be discovered if I write. The best thing I did for my creativity was the Creative Every Day project and still life 365, which I did through 2010. It gave me the discipline for writing and art that I was lacking. It transformed my thinking about virtually every aspect my life. And kept me accountable every day. Now, I don't need that project to do something creative every day. It just is part of my schedule and my life and my children's lives. Last year, I also did NaNoWriMo, and wrote a novel in a month. That experience was difficult some days, but mostly, it was like every other day of my life. I write, write, write.

Anyway, you asked me HOW I do it. How I did it was firstly by setting up a daily art time with Beezus after Lucia died. I wrote it down on a piece of paper. It was part of a whole day schedule after Lucy died, because I had no idea what the fuck I was going to do with Beezus when Sam went back to work. I was a wreck. How am I going to take care of a little twenty-one month old baby when I can't stop crying? I tell this story a lot, because it changed my life. I just penciled in a time every day that we painted. Actually, I made a whole schedule for my day, that is how I thought I would survive. It said:

8am-Brush teeth. 
8:15am-Get dressed. (Then fill in lots of daily chores.)
1pm--Art time.

Then, I bought a book on how to paint still life with watercolor, and did the lessons. Because I thought maybe taking a painting class would be good, even though I didn't want to be around people. I had been painting since I was a kid, but I had wanted to pick it up again for years. I gave Bea washable paints, and just didn't correct her work, or if she painted on the wall. I just let her paint, and I just painted. We listened to Tegan and Sara or Bjork. It took almost no time for me to begin painting about my grief. Now, I have integrated art and writing into my life more or less daily.

Sally asked me what other things I do to unwind and rejuvenate. I play guitar. I read. I like to read books with other people and talk about them, or just read them. I would join a book club in a heartbeat. I like literary fiction, mostly and memoirs. This summer, I have read the Paris Wife, State of Wonder, the Physick Book of Deliverance Dane, Fearless, Miss Peregrine's Home for Peculiar Children, Mummy Knew, Dead Reckoning, Mommy Doesn't Drink Here Anymore and I am currently reading the Magician King. I also love playing Scrabble, or doing crossword puzzles. When I get a free fifteen minutes, I do a crossword while sitting in the really hot bath. I also am really dedicated to my sobriety right now, so I hit meetings most days of the week, call other women in recovery. I sponsor a woman. This weekend, I am going on a spiritual retreat for other women in recovery.

In general, I just be. Part of what I love about being a stay-at-home mother is the freedom to do all of this. I don't take it for granted, so I really try to utilize my time in creative, soul-satisfying ways. I will have to do back to work soon, so I am trying to get all the writing I want done before that point, because I just don't think I will have time to do it. I also love just being with my kids. We paint for a little. We talk. I play guitar and they sing. They draw. I write a blog post. We color. (I love coloring.) It feels busy and very relaxed. Relaxed is the crux of it. Basically, I find my life to be extraordinary in its ordinariness. Art and writing have a lot to do with that.

Tuesday, August 30, 2011

questions four to ten: random bits and the winner.

This is a collection of random questions asked of me. And I also randomly drew a person from the questions post. And that number EIGHT and that winner is SARA from Heart Heal Hope, who I adore. YAY! You get to choose either-- They Were Still Born, which my essay "Mothering Grief" appears in, In the Midst of Winter, or GNOMES. Just email me, love, and I will get it off in the mail to you soon. Onto the questions...

Monique: Who has been the kindest to you in your life? Pre & post loss, b/c I imagine there is likely a difference.

Wow, Monique, this is a great question. And really difficult to answer. I have had many kind things done for me. Stuff that still give me chills, breathtaking one time incidents done by people who had nothing to gain. Currently, I have someone who is anonymously sending me awesome things to read--an event flyer to an art show in San Francisco by Yoshitomo Nara, one of my favorite artists, and Francisco Goldman's new book. While those incidents are great anecdotes, I have been surrounded by kindness and love in my family for my whole life. And so, I think I have to go with my family, both before and after. Their kindnesses are so usual and daily that I tend to just see their kindness as part of the fabric of my life.

My twin sister and my mother are there unconditionally for me and my family. They both mourned Lucia’s death deeply and still mourn her. So, even if those I feel uncomfortable in the rest of the world, some days, in my family, my sister and mother treat Lucy like a normal part of our family. We had some difficult moments, my mother and I, after Lucia died, because my mother was so grief-stricken and so was I. We are a little too similar emotionally. Too self-reliant. But we moved through it, somehow, and are in a good place.

I talk to my twin sister every day at least once. Most days, three or four times throughout the day, and we play Scrabble on Facebook, and sometimes we even email. If I have an event, she always offers to go with me, just to hang out and drive with me, or soothe my nerves. She also makes me granola every week or so that is gluten free and delicious. She sews for me. I drop my children off whenever I need, and she is always enthusiastic to have them.

In fact, both my mother and sister act like I am giving them a gift when they watch my children or do me any favor. If they find me difficult, they never let me know. And I must be difficult. I also talk to my mother at least four times a week, I think. My mother is incredibly generous and loving. As an adult after my divorce, we became quite close and spent most weekends together drinking wine and gossiping. I can’t catalogue all the things they have done for me. But let’s put it this way, if I wrote a blog post complaining about my mother (And she does drive me crazy some days.) and she read it, she would probably say, “Oh, Angel, you are such a good writer. You really should write a book.”


Nerissa: My question is this. I vaguely remember a post in glow shortly after I contacted you. Did you date a boy named Holden in high school? And if so did you mention his name just for me? I felt like you did. Just because we love to see and hear our babies names so much.

Yes, I did date a boy named Holden when I was in college. He was a wonderful guy--smart, handsome, funny. He was on College Jeopardy. I loved his name because I loved the Catcher in the Rye and was vaguely obsessed with J.D. Salinger. And maybe I did mention his name because of your Holden, Nerissa. Your Holden and my Holden are the only two Holdens I have ever met. Beautiful name. Beautiful boy, yours I mean.

Mary Beth : OK, this is a random one: I love your Lucia tattoo and have been contemplating getting one myself (well, a Calla one, obvs!). ANYWAY, how much did it hurt to get it in that particular spot? I have no other tattoos, andI like that spot, but I think it's going to really be painful.

Actually, it wasn't that painful at all. I have one other tattoo on my back in between my shoulder blades. I see tattoos there quite a bit now, but when I got it done in 1995, I didn't know anyone with a tattoo there. That was painful when it went over the spine. I played chess the whole time I was being tattooed and every time the tattooist hit my spine, my hand would make this weird involuntary movement that knocked all my chess pieces off the table.

I know we aren't talking about that tattoo, but I never get to share that little weird anecdote.

My wrist tattoo took ten minutes, perhaps less. It cost me $50, and it hurt like it hurts when you get a sunburn, only concentrated in one spot. I have a high tolerance for pain, so perhaps I am not the person to ask. But I can only say this, I love it. I love having it. I love seeing her name right there. I only wish I had figured out a way to do all my children. I only have two wrists.

Angie: When are you coming west?

How I wish I could. Can we set up an Angie out-west fund?

Maddie: When are you coming to Australia to visit? Loving your wise words always.

How I wish I could. Can we set up an Angie to Australia fund?

Heather: Do you have any pictures of Lucy that you display openly in your home?

No, I don't. Well, I have one little itty bitty one in a Dia de los Muertos ofrenda-like frame that I have in my studio. I close it up when I am not painting, but when I paint, I open it up. I have a picture of me pregnant with Lucia, the one in the about Lucia section, framed and in my bedroom. But my husband feels like he can't see her picture everyday, and I have tried to respect that, even though it breaks my heart into a thousand pieces.

loribeth: I'm curious: did you ever study art at school, or is it simply something you do?

I did go to art school from the time I was in second grade. Everyone I knew had their thing. My sister loved ballet, but I just didn't know what my thing was. So my mother sent me to the local Art Museum's classes, and I did that for a few years until I found gymnastics and that became my thing. In college, I first majored in Film, then I dropped out and traveled around. I moved to Tucson, Arizona, and began working with an artist there as a kind of assistant, finisher. I painted the mural she designed, or she did the lettering and I painted. I also worked with her to come up with freelance designs of logos and other things. I designed a band logo, and then they tattooed themselves with my design. It was cool. I think about five people have tattoos with doodles I made. I designed a logo for a dude who invented a home coffee roaster. I was paid a hundred bucks and got a free roaster, which I still have. I always did art in one way or another. When I finally finished my degree, I did take a few more drawing classes. I always thought deep down I was a potter, even though I have never thrown a pot in my life. 

Monday, August 29, 2011

question three: pregnancy after loss

Angie: Pondering how to word my question just right so I'll get a mile long post with all life's answers on how to survive pregnancy-after-stillbirth without dissolving into the schizophrenic bag lady on The Simpson's who throws live cats at people.

So here it goes, how did you do it? At what point did you and Sam finally realize Thor was Thor and not Lucy? (Kevin and I are constantly calling Little Kevie Aiden). What additional testing/medical attention/medical intervention did you receive as a result of having a prior stillbirth?


Oh yeah, what books, websites, meditations, internet life coach can you recommend to help ease my anxiety and nerves??

Angie, how did I do it? I have no fucking idea. It was so incredibly hard. I am pretty sure I did turn into the cat-throwing lady on the Simpsons. I was not one of those approachable lovely mother earth goddess pregnant ladies with a touchable belly. People didn't ever say, "OH, how gorgeous you are." Basically, I stared at everyone with daggers--Touch me and I cut you, bitch. I may have even cut a bitch. I don't know.

I will start with the questions easiest to answer: What additional testing/medical advice/medical intervention did I receive? For some background, Lucia died at 38 weeks of pregnancy. I had no issues during my pregnancy. I was in a car accident at 29 weeks. It was a minor incident, but I went to the hospital for 24 hour testing and I seemed to be in labor. Lucia's heart rate dropped when I first got there, but then the labor stopped, and the baby was fine. I heard her heartbeat all night. The doctors all cleared me and basically told me that if anything was going to go wrong, it was in that time frame. I had nothing to worry about. It was during that time that we discovered that Lucy was transverse, meaning sideways in me, and that I might have to have a version. I read up on some yoga moves to help her turn, and did them, and well, she turned around 33 weeks.

At 38 weeks, during a normal weekly visit, my blood pressure was a little elevated. 130/90, so I went into the hospital for monitoring. Honestly, I thought I was in labor. My contractions were fairly close together. My blood pressure went down when I rested, and then sent me home. Lucia died either the next day or the day after that. When Lucy died, we opted for all the testing. The one thing they saw when she was born was that she had a marginal cord insertion, but the midwives assured me that it had no effect on her growth or death. Lucia was 6 lbs at 38 weeks. Beezus was born at 37 weeks and was 7lbs. 2oz. I will just say that with Beezus, I had natural childbirth in the birthing suites. I was induced with Lucia and had an epidural.

Anyway, beside the point, but I thought I would mention it since you asked me about medical intervention. To me, it seemed like Lucia's growth slowed down at some point. She was measuring ahead until 34 weeks, then behind after 35 weeks. Of course a ton of theories went through my mind in the six weeks until we got all the chromosonal and autopsy results--the car accident, the version, the marginal cord insertion. At six weeks out from her death, I met with a Maternal Fetal Medicine doctor who would become part of my care team in my pregnancy with Thomas. At the time, he said they found no reason for her death. She had an 8% placental infarction from the car accident. To have any effect on a pregnancy, it would have to be somewhere around 80%. The marginal cord insertion wasn't the issue. Because she was born vaginally, it could have been that she was cinching her cord when she turned, or as the midwife described, she could have been grabbing it. In her hand. Squeezing the life out of herself without even realizing it. It still makes me shudder to think of it. If it was a cord compression, or something like that, the vaginal birth happened and the cord became uncompressed, so they couldn't tell. There seemed to be a post-mortem clot coming from her body into the placenta. But from the 23 blood vials drawn on me, and her autopsy, they found no virus, no chromosonal issues, no genetic issues, no evidence of trauma. She just died. The best thing the MFM said was that I was a healthy person and there was nothing I could have done.

During that meeting, we discussed the care I would get in my next pregnancy. I would keep my midwife and also work with an MFM. It is the practice of my midwifery group and the MFM to induce pregnancy the week before death if the baby was full term and has an unexplained stillbirth. They do this for the mental wellbeing of the mother and the physical wellbeing of the child. My understanding is that inducing at 37 weeks is kind of unusual for practices, but it is really one of the ways I thought I could survive her pregnancy mentally. So, I was asked to wait six months before trying again. I did. When I became pregnant, they discovered my thyroid had become extremely underactive. At about six weeks, I began bleeding from a subchorionic hemorrhage. That continued for six weeks. I did opt for testing, which I didn't for either of my other children. I just wanted to know everything. I did the 12 week nuchal scan, then the 16 week quad screening. Thor came up with the markers for Down's Syndrome, and we opted to have a amniocentesis at 20 weeks.

My care plan, I should say here, was discussed and decided upon during my autopsy findings with the MFM. I would see my midwifery group once a month until 28 weeks, then I would see them once every two weeks, then at 32 weeks we would start non-stress tests (NST) every week. I would meet with a genetic counselor early in my pregnancy and do an entire genetic work-up for our family and talk about risks. And I would meet with my MFM at 12 weeks, 16 weeks, 20 weeks, 28 weeks, 32 weeks, then once a week at 32 weeks for NSTs. So at about 32-35 weeks, I began having three appointments a week, one with my midwife, one NST with the midwife and one NST/ultrasound appointment with the MFM.

During my pregnancy, I developed very pronounced "white coat syndrome"--when I went to the midwife, my blood pressure went up. Every heartbeat check was met with almost a full blown anxiety attack. You would have never known looking at me, but I was in shock and losing it inside. I cried often on my way out from just sheer release of emotion. At 28 weeks, because of continued elevated blood pressure, the midwives could not continue my care, so I had to switch providers to the obstetrians in the same practice. One thing I should say is that I go to a midwifery practice, and they usually do not let you only see one midwife, but one midwife did see me the whole time. I just scheduled with her only. She also gave me her personal cell phone to call her if I was freaking out. I never called her, until the hypertension diagnosis, but it was nice to have that option.
At 28 weeks, switching providers and being diagnosed with hypertension, I bought a home blood pressure cuff and was put on modified bedrest. It didn't work too well, because Sam had surgery at that time and I even had to help him to the bathroom.

To summarize, it was hell. I am still recovering from pregnancy after loss. I pulled away from most of the people in my life because there was simply nothing to say. I didn't want to hear assurances that everything would be okay, and I didn't want to talk about everything that could go wrong. And everything was seeming to go wrong. And everything went right, because Thomas was a big, healthy boy. The extra monitoring helped me a great deal, so ironically, the last weeks of my pregnancy were the most comforting. I heard his heartbeat three times a week, I could get him to move on demand, and I slept mostly downstairs away from everyone. I didn't buy a home doppler, because I would have made myself crazy, so I forced myself to trust my care team. Thor moved well for all the NSTs, and those really eased me. At some point, I had to concede that I was doing everything I could possibly do. When I went in at exactly 37 weeks, I was already three centimeters dilated and having contractions every two minutes. I gave birth ten hours later. Thomas was born at 8 lbs, 3 ozs. He was ready to come.

So how did I do it, emotionally? I stayed maniacally busy. That is part of what helped at the end, the three appointments kept my brain off of the thought, "Is he dead yet?" I started still life 365 at about 24 weeks, because I wanted something to do everyday. I wrote a lot. Many of the women I connected with early on had their rainbow babies around the same time I was pregnant, and my dear friend lost her rainbow baby during that time, so I was grieving for her, happy for the others. I didn't connect with the pregnancy and Thomas, to be honest. It felt otherworldly. Yes, I was pregnant, but I didn't really think there was a baby in there. I don't know how to explain it. I gave birth to him April 1st, and it wasn't until February that I called him my son. In that two month period, I began connecting the fact that I was having a son, a loved being, rather than just hosting a death, if that makes sense.

The worst casualty was my marriage, I guess. I took a lot of my anxiety and anger out on my husband, and didn't think I could ever forgive him for electing to have surgery two months before Thor was born, after I was told I was on bedrest, which I wasn't able to do. I just felt he robbed me of the ease to follow my doctor's orders. He was out of work for six weeks, completely on the couch for four of them, unable to help with Beezus and whacked out on pain pills. Honestly, he just got the brunt of my anger, all the time. I really thought that our marriage was over because I would never forgive him. Two months after Thor was born, we decided to go to therapy, because I really didn't think I could stay married with this much anger and resentment.

It was the best thing we have ever done. Almost immediately, I stopped feeling anger and resentment. It was incredibly important to take time for us again. And I think that was what was lacking during my pregnancy, time to just be together. His surgery meant that I was taking care of him and that was one more person/thing demanding my attention. Honestly, I have issues asking for help and vulnerability. And what I really needed was help. He promised me in the beginning of us trying to get pregnant that I wouldn't go through every ultrasound or appointment alone, but I did. I don't think he came to one NST, he certainly only came to one ultrasound to find out if it is a boy or girl, and when you find out your child is dead by ultrasound, that whole experience is like walking into a nightmare. I needed support in ways I never needed support before, and instead of asking, I simply started resentments for all the ways in which people couldn't be there for me. They aren't my proudest, most mature moments. As I have said often in this journey, I did the best I could with what I knew about the world and myself.

So, anyway, during the pregnancy, here is what I thought: 1. I wouldn't be capable of loving Thor because I was so anxiety-ridden and angry that I couldn't forgive the baby, 2. I would divorce my husband because I was so anxiety-ridden and angry that I wouldn't be able to forgive him, 3. I would never love the baby because he wasn't Lucy. After he was born happy and healthy and very Buddha-like, I found that none of those things were true. He was his own little being, different and separate. I found that happy and sad were not opposites like light and dark. Happy and Sad can exist together. When I was a kid, I always thought vanilla and chocolate were opposites. You could only like one or the other, but the truth is those flavors go perfectly together. And happy and sad were emotions that suit each other quite nicely. I was so happy, so full of gratitude. I had no expectations of who Thor was, because I hadn't connected to him, except I did, in spite of myself. He would poke me when I poked him. He did that every night from like 28 weeks on, and so, I would play with him and laugh even though I really didn't want to laugh. When he was born, he did the same thing, and I found that I didn't blame him. He was just a little ball of love, and I loved him.

I fell so deeply in love with him so immediately, I couldn't imagine life without him. But I also missed Lucy. I really felt Lucy's death in a different way. She is dead. Never coming back. Not in another baby. She is who she was and she died. I had to let go of expecting her to be Thor or Thor to be her. I think it is in the same way that you can separate out different three year olds--they share a quality, but they have different spirits or ways of being. In the belly, Aidan and Kevie might have similar ways of being, but they are different people. When you see Kevin, you will see the difference in a way you simply can't right now If that makes sense. And so, the two felt so distinctly different. I'm not sure I am describing it well, or articulately, but suffice to say, they have been their own people, loved in their own ways.

Angie: Oh yeah, what books, websites, meditations, internet life coach can you recommend to help ease my anxiety and nerves??

The books I read were all diversionary, none had to do with stillbirth. I read Sookie Stackhouse series, Harry Potter, fanastical and fun reads. I also read every book by Ann Patchett and Elizabeth McCracken. Basically, I did not read about pregnancy ever. I did buy the book Pregnancy After Loss, and I paged through it, but I couldn't read it. I read websites that made me laugh, like Hyperbole and a Half. I didn't even connect with the other women who were pregnant at the time, because I couldn't talk about it. I felt both incredibly fortunate, but more scared than I had ever been in my life. At the time I was pregnant, Carly was pregnant and started a website/journal of her pregnancy (http://thewaterchilddiary.blogspot.com/). I would recommend it, if you haven't seen it. She is very positive. I couldn't be there too often, not because it isn't amazing, I just wasn't in the head space where I could read about pregnancy. I really connected with the things Tash said during her pregnancy, so I loved all her posts about pregnancy after loss too--she gave birth to her son a month after Thor was born.

I did buy and use a number of meditation CDs during my pregnancy--Jon Kabat-Zinn's Mindfulness of Beginners, and also I used Good Medicine by Pema Chodron in 2009 and really started practicing tonglen meditation. I often practiced tonglen for women going through stillbirth and pregnancy loss, because I understood that pain and could easily take in their suffering. It also helped me let it go after meditation and maybe release a little of my own.

I also did prenatal yoga most days with a DVD by Shiva Rhea or I did a DVD called Prenatal Fitness Fix with Erin O'Brien, which is awesome. She is really amazing. I also bought this prenatal fitness DVD by a woman in Cirque Du Soleil.  I would say connecting with women through art and writing, though, was the most important thing for me.

Working on grief and being present with those feelings were important parts of my pregnancy, so I continued it. I always thought I would pass off still life 365 at some point and maybe to someone also going through pregnancy or trying to conceive so they could just get out of their head. It helped me a great deal. So did writing about this, so thank you.