Showing posts with label Right Where I am. Show all posts
Showing posts with label Right Where I am. Show all posts

Thursday, July 17, 2014

right where i am: five years and almost seven months

A few years ago, I launched a project called Right Where I Am where I asked other babylost parents to write about right where they were in their grief. And it also was about how wherever you are, it is right. I asked people to only talk about the present moment in their grief, not where they were yesterday, or tomorrow, but how they were feeling today. I asked each person to title their piece with Right Where I Am: followed by the time since their child or children died. Here is  the first year's postHere is the second year's post. Here is the third year's post. One hundred and seventy-nine people wrote about right where they were the first year, the second year, it was one hundred and thirty-two, the third years, there were seventy. I haven't written here since last year, but I thought this might be a good project for me. Also know that if you are new to this community, we want to hear your story too.  I hope you decide to join in. If you do write, post your link in the Mr. Linky below. Feel free to ask questions in the comments, I'll answer them as soon as I get them. 

Today, the wind blows through the house. The children play in the basement, as the chimes call to them. Come outside, children. Ride your bike. Slowly, they emerge from the earth, barefoot. "The sun," they say. "We see the sun." I don't follow them outside. Since we moved last fall, we don't have city issues to worry about. We live in a rural community far from a main road. We have a few acres, sixteen chicks, and Jack the dog roams free. He sticks close to the house. The stables fill with feathers and entrails from the owls eating rodents at night, and then the other animals scoop up the guts for dessert. My children find this absolutely fascinating. Death in all its gory, life-affirming mess.


It's been five years. We left it all behind, as was our instinct when she first died--to run to the middle of nowhere where no one knew our story. Far from the tree I planted on my first Mother's Day without my daughter. Far from the place where she died and was born and where a funeral director walked with her ashes in the smallest jar I'd ever seen. Far from the people who remember me locked in my home for months on end, and who later whispered, "I remember when you wouldn't talk to me." Far from the hospital where I held Lucia's dead body in my arms, kissed her nose, crying, " I don't want to forget her." The nurse and everyone treated me like a child, then.

"There, there. You will never forget your daughter."

That is not true. I am far from her now.

I don't forget that she existed, but I forget what she looked like and smelled like and whose hair she had. I doubt my eyewitness account. I vividly remember seeing the Easter Bunny fill my basket when I was four; I am a highly unreliable witness. I cling to these things like what color eyes she had, or what color I thought she had when I briefly lifted her eyelids to peek--a color that would have obviously morphed through the months, settling on something else by age one. That color is blue almost purple, but that cannot be. My baby's immutable eyes are a color that does not appear in eyes. Or her hair, it seemed black, except it was wet from birth, and all hair looks darker when wet. Maybe it was brown, or something else. Maybe I should forget those things anyway. They lack the essence of her. And the pictures of her show a dead baby, not my daughter. I don't even look at them now. All those things I thought were important seem meaningless. The things I remember now aren't my memories at all. They are the things that five year olds embody, the things I am missing.

Five is kindergarten and bike riding. Five is writing your name and singing songs Mamas didn't teach you. Five catches frogs in the pond. Five tells you dreams, and sometimes fibs, and often says the most profoundly simple statements that change the way you look at the world. Five is ballet dancing, beauty, curiosity. Five runs and skips rope and tries the hula hoop. Five has baby dolls named Jane and Purple and Apple. Five collects rocks and feathers in cigar boxes. Five kisses and tells you that you are the best mama ever. Five thinks farts are hilarious and helping to sweep is a treat. Five is all arms and legs and not baby anymore.

But Lucia will always be a baby. It is what I grieve most. That she will never be five. That she never lived a life of mistakes and grace.

Yesterday, I went to lunch with my friend. We've met since I moved here, and she never knew me actively grieving. We talked about our respective grief. She asked some beautiful, honest, straight forward questions about Lucia's death and birth. And I welcomed the space to think about how much my life has changed since her death. And to talk about my silent daughter. Lucia gave me many gifts in this life. At five years, I can appreciate and voice that gratitude for her life and death without diminishing the real sadness of her death. Her death split me into two, and forced me to exorcise my demons. My sobriety directly came from Lucia's death; my grief drinking pushed me to look at the ways I use alcohol in my life. I am sober over three years. I wrote about my friendships that have been lost, but I have so many friends who have come into my life because of Lucia's death, or through my other work as a direct result of Lucia's death. These people are my soul family, I think, not just friends. My best friend Jess at after iris comes to visit each year, and we forget we have the dead baby thing in common. It comes up so easily in conversation, we don't even realize we talked about stillbirth right before Run-DMC. I have grown closer to my family through the years as they abided our suffering, then swooped in to remind us they have always grieved with us.My lowest points afforded me my most valued spiritual lessons, and I have gratitude for those lessons.

Because of Lucia's death, I lost the spiritual center I thought I had. I had constructed it of half read books and a respect of faith that I never quite understood. My religion was a mix of Buddhist bravado with dropping acid and running in the desert. But her death brought me to a dark desolate place. There was me. And something had to give, or I too would be nothing. So, I found my true spiritual self, and began healing myself, then others. If you didn't know, I have left this blog for my spiritual writing, but it so often is informed by my experience with grief and in this bereaved community, learning about unconditional acceptance, suffering and abiding. I have made a career of my spiritual work. It satiates me in a way that no other job has, even writing about my daughter. This is another gift from her.

On Vernal Equinox, a week before my husband's scheduled vasectomy, we talked about our last days of fertility. Ruminating about how much we wanted another child, and how silly that would be, and then why would it? And then how we are old now, and sleeping through the night, and out of diapers, and how ridiculous another child would be and how we probably wouldn't get pregnant anyway, we talked ourselves into trying one last time. Just once. On Vernal Equinox. The day marked by bunnies and other horny little animals making littler animals by the thousands. Centuries of people worshipped the day for its fertility. Not surprising in retrospect, we conceived our fourth child on that day. I am now nineteen some weeks pregnant with another boy. We are due on Santka Lucia day in December, only a week before she died.

Life is strange.

Grief seemed like this heavy jacket I would never shake or take off, the cumbersome thing I would carry forever. And anxiety, like heavy rocks, seem sewn into the pockets. And yet, I have either gotten so accustomed to the weight, I don't notice it. Perhaps through the years, worn from salt water and a relentless wind, it shredded without me realizing, falling at my feet as I trudged to the next milestone. I carry a child in my womb with almost no worry of his death. If he dies, we will survive. We will grieve. We will cry. But I control nothing. It is as though I have turned it completely over to the universe--whatever happens, we will face one moment at a time. I eat right, take my prenatal vitamins, see the midwife on my monthly appointments, avoid radiation poisoning, but I don't obsess on his death, like I did with Thomas in my tummy. My anxiety rests comfortably in a lounge chair down in the field. I could call it up, reacquaint myself with its seductive obsessiveness, but I don't. Life is too good without grief and anxiety as constant bedfellows.

My children have grown up without a sister. Beatrice doesn't remember a time when Lucia wasn't dead and I wasn't a grieving mother. Her memories start after Thomas was born. Beezus tells me, "I want a little sister who doesn't die." And I say, " Me too, love." Thomas recounts the little brother he might have had if I hadn't miscarried two years ago, or the big sister that isn't here. He knows they died, and says it like he understands all things die. Raising children in a home with grief means we talk about death fairly often, maybe more than one that hasn't lost a child, but not daily. Unlike other bereaved parent friends, my children have never asked me about their own death, or my death, or Sam's death. They don't seem to have fear around death at all. Of course, I always say things like, "Everyone poops. Everyone cries. Everyone dies." Beezus and Sam grieved when they found out the baby was another brother. "Now, I will never have a sister who lives," she wept into my shoulder. There is no replacing Lucy, she says, but still, she wants a little sister.

When we moved last fall to the middle of my home state, we faced all those old scenarios as though facing them anew. How many children do you have? What kind of writer are you? What did you do when Thomas was born? And those flippant comments about having a rich man's family--a boy and a girl. Or the assumption that we know no grief. That our happiness simply exists because we have money and a house, and not because we fought damned hard through years of therapy, writing, arguing, crying, seeking, meditating, desolation to be happy. But that stuff doesn't phase me anymore. I sometimes say three children, other times two. I don't force it to be my stance, or political issue with every glib question in the grocery line. Once in a while, I go to coffee with new friends, and find myself recounting the story of my daughter's death, telling people who I was and how I survived. And they shift uncomfortably, but also stay open. And I decide to ignore their cues of discomfort and accept their words of reassurance to continue. That they want to know. I allow my vulnerability to be present. I learned that by writing about my own grief on this blog. I learned that when I grieve, I am not a monster. Rather I am a human in its fullest expression.

And though I am far from all the things I once did to remember her, I have grown closer to her now than I ever was. All those things distracted me from feeling the weight of what I didn't have, which was her in my everyday life, and all the ways children change each part of you. I see her everywhere now. It isn't painful. Lucia has become an integral part of our family story, and our family. She is in the lady bugs, and the lush garden, and the chicks who peck at the ground. She is the sigh we have when we see a beautiful baby, and the way we hold each other before bed. She is the kiss we give eyelids, knowing full well the color beneath them. She is the wind and the chimes and the full moon and the prayers and the stardust and atoms and the fireflies. She is everything. Because of her we are here. And here is beautiful.

So, where are you? Tell me Right Where You Are, and share your blog and name below.

Friday, May 31, 2013

right where i am 2013: four years, five months, nine days

Two years ago, I launched a project called Right Where I Am where I asked other babylost parents to write about right where they were in their grief. And it also was about how wherever you are, it is right. I asked people to only talk about the present moment in their grief, not where they were yesterday, or tomorrow, but how they were feeling today. I asked each person to title their piece with Right Where I Am: followed by the time since their child or children died. Here is  the first year's post. Here is last year's post. One hundred and seventy-nine people wrote about right where they were the first year, the second year, it was one hundred and thirty-two. It was more than profoundly interesting. It was beautiful, heartbreaking, lovely, powerful. I found it fascinating to read last year's and compare where I was last year to this year. But also just to think about what grief is like for me now, and what I am wrestling with these days. Also know that if you are new to this community, we want to hear your story too.  I hope you decide to join in. If you do write, post your link in the Mr. Linky below. Feel free to ask questions in the comments, I'll answer them as soon as I get them. 

Sometimes where I am feels not right. Something more should be pouring out of me. My daughter is dead, after all. She slipped from my body on a cold December evening four years ago, her skin torn and white. My heart broke open, the last of that innocent, young me flowing into her. I felt an overwhelming compassion for all suffering. It was a few weeks of tremendous pain and understanding, then I closed my heart, and waited for someone to work hard to open it.

But that wasn't the worst day of my life. I don't even know which day was worse than finding out she died, but it wasn't the one where I held her. There were random days in that first year, days of darkness and crying and anger so overwhelming all I could do was scream. There were days when people told me that they could no longer abide my grief. Those were bad days. The worst of them maybe came at year three, because the effect of three years of grieving barreled back at me. My blog and writing has never been the same since that day. The worst days.

In the worst days, there were also the best ones of my life. Ones of grace and serenity. Ones filled with gratitude and recognition. This community held me so many times, and I have watched it hold all these people at different times. Those moments of grace, which I have witnessed for four years, humble me. I am privileged to be among such incredibly amazing, creative, funny, smart, deep people.

Here is the thing I dare to write. I grieve Grief. This thing I was so sure of, that drove every moment of every day for those first few years. The aching, the longing, the sadness that rested its head on the shoulder of every joy.

I was absolutely certain of grief, as though it were a person I could commune with, blame for the spilled milk, fight with, bathe with. I could photograph Grief back then, standing in every family shot, right behind me shooting up two fingers behind my head, whispering, "Bunny ears, bitch."

I knew Grief. I could define it. Write about it. Paint it. It looked like me, and it looked like a saint, a bodhisattva, a darkness, an ache, the Angel of Death. Grief looked like weeping, felt like a grenade. And now Grief is gone too.

My daughter's death lies just beyond reach. It was there. She was there. Or rather her absence was there. I was so sure of the negative space that was just the size of her. I could see the place where she should have been, the mother I was supposed to be, but now, it is only this one life I'm living. I'm too far down this path to remember any other path that once opened for me.

She is gone. Poof. Presto. Ala-Kazaam. It is the most terrible magic trick ever. A black sheet thrown over my grief, and it is gone, and so is she.

Perhaps I grieve the immediacy of her death, raw and pulsing. The certainty I had of what people who loved me should do or be or what I needed and didn't need. Do I grieve my bad behavior too? I suppose I do. I cringe and miss the certainty is all. Now, I expect nothing. I don't have a particular burning desire to talk about Lucia Paz and the way her nose was just like Thomas' nose. It just is. Anyone else's acknowledgement of her death, her life, or her absence affects nothing of my feelings about her death, life or absence.

There is a hole in my years, one of grieving, like the years of a drug habit, gone into oblivion. I can recall those months, the darkness and pain almost too much to revisit, so I don't often. It was hard. My baby died. I wrote and wrote and emailed and wrote. I do feel different, like I will always be the woman whose baby died, who behaved badly, who grieved out loud for too long. I protect my heart. Constantly. Always. It will be a life long practice to trust people again, or rather to not care if they are worthy of my trust. I try to make friends, but the ones that I am drawn to are the ones like me, who have something that profoundly shifted everything about them. Mostly now, I am friends with others in recovery. So many of the people I have met through my sobriety have lost a child, or a spouse, or both. Truthfully, I have trouble being a mom in the schoolyard waiting for my kids, making chit chat. I do it. I try, but I can never quite get over that hurdle of "BUT THE BABY DIED." I don't even think it consciously. It is just there. Waiting to be said.

Last year, I was still bleeding from my twelve-week miscarriage. It had only been a few weeks when I wrote this post last year. When my heart chakra broke open then, bleeding the blood of my fourth child, pouring all the love I could into his passing, I knew of this fleeting, precious time with him. This is it. This is all I get.

I let my heart stay open. I let people hold me and pour their love into me. I realize now the heart breaks open to accept the love from others, not to give it to others. I had it all wrong when Lucia died. It is why I had so much hurt and pain from small things. This time, I let myself be loved. I let my circles of women hold me. And in doing that I healed the pain and hurt from Lucia's death. Not the pain of her death, but the unforgiveness and anger I had for the ones who could not abide.

At four years, I have forgiven all those who couldn't be strong. I forgive myself for her death. I forgive the euphemisms and the wrong things said. I forgive all those years. I forgive all those who never said what they wanted to say. I forgive the people who think stillbirth is not a big deal, or that I should be over it, or that anyone should. I forgive myself for drinking too much, and being a rotten friend (even if I could not have done anything more than I did.) I forgive my husband. I forgive.

I am free of unforgiveness. This has been the practice of the last year and it has been incredible to live in healing and reconciliation, to open to the Divine and my own Higher Self. My wings beat hard and strong. I soar. I can tell you that I was not ready for that at year one, two, three, even. But this year, I feel like myself again, the one that I always knew I could be, or was. The one full of forgiveness and love.

There is a different grief in my family right now. I have no desire to write about it. It is something I sit with, turn over in my head. I grieve with someone else now. I open my heart to her, and lay my hands on her, listen and talk. To abide is the great gift of these years of sobriety and grief. I am now capable of being the friend I needed.

:::

Now, it's your turn. Where are you in your grief? Emotionally. Physically. Psychically. Spiritually. You can compare your journey from last year's post (don't forget to link last year's post to this years.) Title your post, "Right Where I Am 2013:(Time since your child's death)" then come back here and link your blog post on the Mr. Linky below. Click other participants and read about right where they are. Comment if you can. Thank you for telling me about right where you are. If you don't want to write a full post, why not just comment here and tell me the time since your loss(es) and anything else you want to share. If you do not have a blog and are a regular reader, you can post your essay on this very blog as a guest writer. Send me an email at uberangie(at)gmail(dot)com. Spread the word around the community by linking back to this post, so people can find out what grief is like on all stops on the road. 



Friday, June 22, 2012

Guest Post: Right where I am - 3 months, 3 weeks and 3 days


Veronica sent me a beautiful email describing the birth of her first son and about what her life has been like since Alexander was stillborn February 27, 2012. She was 41 weeks and two days pregnant. So much rang true to me in her words, helped me connect with Lucia's birth, again. That is what is so beautiful about this community--someone else's story helps you grieve your own story. I was so humbled and honored to bear witness to her experience. (Kind of keeping my fingers crossed that Veronica starts her own blog.) She also included a guest post for Right Where I Am. She describes herself this way, "I'm Veronica. I turned 28 this past December while I was pregnant.  I was thrilled to be having a baby before my big 3-0.  I live in southern Ontario, Canada, and have worked meaningless, well paying jobs for the majority of my adulthood.  I own a home with my ..boyfriend, or no…partner, or ahhum… MAN who I spend my life with who I’ve been with since...forever..." 

Wherever it is, I am exactly there.  And with every day that has passed and with every day that will come, I will be right where I am.  I have often mulled over where I could be or should be, but in looking at this process, I with all my heart accept myself right where I am, all the time. 

I think about him – my son who died – every day, every second of every minute.  I feel like he exists alongside me in exactly where he is supposed to be and where he actually is – sometimes in life, and sometimes in death.  He is here, as the growing infant he was supposed to be and simultaneously he is here, always dead and only almost born alive.  Sometimes I feel him nowhere, as my missing him takes his place.  If I let it, the missing lives heavily in my heart, and throughout my day.

My emotions on a page seem microscopic in comparison to what they really are.  They are enormous and uncontainable.  I have wicked day dreams of jarring them all up, and sorting them all out, and placing them in the proper place in my life… one day I’ll label them when I figure out what they’re all called.  But instead, they whirl around me, sometimes causing havoc, and other times letting me sleep soundly.

Today, three months, three weeks and three days after he died – it doesn’t seem too heavy.  Today, it seems more a part of me than something that was done to me.  My observant self can attest that this feeling is fleeting.  But myself that sits here in front of this computer tells me it is how I feel today.  I’ve never known of someone who has the ability to take part in my every waking thought – but he does.  I didn't know someone was able to be the life behind every emotion, every smile and every tear – but he is.

We just picked up his ashes last weekend.  Horrible, I know.  Three months to pick out an infant urn.  I’d say if I had to do it again… but then I stop and hope that I won’t.  So three months to pick out my first born dead child’s urn is exactly right.

We got the full autopsy results back the week before the urn was ready.  Seemed fitting how the timing worked out.  From the outside looking in, it could seem comforting to have his remains knowing why he died.  Closure if you will.  Nah, still just shitty “to-do” aftermath.

A love note slips out of my subconscious…


My heart belongs to you.  You have it without my will.  You have me in true love with you.  I long for the time where we’re together at last, but I’ll try to enjoy this in between.  I’ll love you to my death, as I loved you to yours, and forever and ever after that.


I’ll meet you on the other side.  I promise I’ll be there, but we’ll both have to wait patiently.  I love your mid night visits in my dreams, as you rest on my chest.  I’ll see you soon my baby boy.


Love Mommy

I am light-as-a-feather… floating … floating … curling in the light wind.  I am a speck of something mixed with nothing all wrapped up in mystery and clarity for all except everyone to see.  My extensions are followed by glowing dust… I didn’t know I was so magical.  If I touch it, it will sparkle … so go on, turn the moss into emerald green.  Do anything you want.  He must be here with me now, because I could not be doing this on my own.  I didn’t posses this power before.  I thought, one day maybe I would, maybe I could, but now I truly can, and I truly am.  I had magic in my belly, all that time.  Why should I be sad?  It was only the human expectation that got let down.  But not me, not now… now, I can finally fly.

Who was that?  My spirit talking?  Or just a childlike emotion bubbling to the surface who wants out?  I don’t know.  But who ever that is, she is right where I am too.

I know how simultaneously liberating and captive losing a child can make you feel.  I walk along side both all the time.  Right where I am now is looking to have this inactive state transform.  Looking to have all of my everything finally channeled into something that means something to me, and maybe to someone else.

I am sad.  I am sad he is not here.  But everything that’s been said about the feeling getting lighter, and softer… I can concur.  I do face plant every now and again into really hard emotions, and sometimes the turnaround feels harder than it did in the early days.  But when the turnaround comes, it feels less foreign.  And staying in the turnaround feels, dare I say, normal.   It’s ok to DO things I like, and not just go through the motions.  My creative side is budding up again.  I don’t know when it was originally planted (at my conception I assume), but I haven’t seen it in bloom since long before I was even pregnant.  Even if my release these days is ignited by grief, and my will to create is steamed in losing a child, I’ll take it.  Because I love her blossom, and I haven’t seen her in a while.  And it’s been a real shitty road to get to her again, but right where I am, I’m glad to have her back.

I’ve made a promise to myself to not do the things I know are not worth my while.  When you know better, you do better, right?  I’ve always known that – but it’s time for me to start acting like it.  I know what kind of work makes me happy – so I’ll do that.  I know what kind of social life is empty and pointless, so I’m not going to take part anymore.  I know what kind of emotions are not healthy to dwell on, so I’m just going to feel from now on… no more dwelling.

I don’t look ahead these days, right where I am.  I don’t plan.  I let go of timing things in my life according to the way I’m supposed to live.  I’m not going to live recklessly!! (Even though sometimes the urge is there) But it seems exhausting to plan out what I’m going to be doing in the years to come after my baby died.  My plans got pretty turned around a few months ago, and I didn’t have a back up.  So maybe it’s better to just NOT HAVE A PLAN at all.  Today is Wednesday, in the month of June, the year is 2012, and I’ll probably have dinner later, and would like to do some more writing tomorrow, and I’d like to see D when he comes home tonight, and maybe I’ll go back to school one day, and I look forward to when I’ll be spending more time with kids when they’re at a cool interactive age telling me about what they like about school and baseball games, and man wouldn’t I love to have Alexander here while I think all these things… but right where I am right now, that’s about it – and I don’t consider any of it a plan.

I didn’t plan to become pregnant, and there I was.  I didn’t plan to have a baby boy named Alexander, and there he was.  I didn’t plan to have him die while I was 41 weeks and two days pregnant, but there it all was.  And I didn’t have the slightest plan as to how the hell I’m going to come out of all this, but here I am, right where I am at that.

Wednesday, June 20, 2012

Guest Post: Right Where I Am - 4 months, 2 weeks

Fliss and her husband found out following the 20 week scan that their daughter had Edwards syndrome and was destined not to stay with us. "It felt like it was presumed we would go down the alternative route, which for some is the right option, but my husband and I could not be the ones to stop her heart and we both felt we had to give her a chance. The rest of the pregnancy was hard to say the least but I don't regret it," shares Fliss. Ayla Hope was born 40+6 on 1st February 2012. As she goes on to say, "We were able to spend time with her and bring her home, she took her last breath in my arms on 4th February at 9:10pm. My heart broke never to be mended. We have a son who is 2 1/2 and he is the only reason I have managed to get up every morning, him and my husband, my rock. "


Where am I now? I don’t know, to be honest.  A state of confusion, loneliness and fear, occasionally hope and positivism.  Desperately trying to maintain the positive persona that I often feel I am.  The person who has energy, wants to make a difference in the world because of our beautiful daughter, who can play with my son without a wedge of unhappiness stopping me from connecting with him completely.  Does he know I’m not completely there when we play? Can he sense that Mummy’s heart is not completely in it? I don’t know, I hope not.  I feel like I’m a worse mother because of my loss, not a better one.  A more grateful, less naïve mother but my patience isn’t what it was, my energy levels shocking and my ability to cry at the drop of a hat quite immense.  My boy wipes my tears away for me now and fetches a tissue, he’s so used to Mummy crying he knows what to do, normally a little dance or something that will make me smile or laugh again.  My heart bursts with love when I think of him and screams in agony when I think of my girl. She should be here with us.

People have told me how ‘brave’ I am, what an ‘inspiration’, so ‘strong’.  Like I’ve chosen to walk this path, suffer this pain and forever have a hole in our family where Ayla should be.  I’m not any of these things, I have no intention of inspiring others, I often hide from the world; that’s not brave or strong.  I am simply a Mummy.  A Mummy who loves her children more than words can ever describe.  I remember when I was pregnant and we knew our daughter was destined to leave us I had to go into hospital with a suspected blood clot (I knew it wasn’t, funny how carrying a baby destined to die but not knowing when can leave you a little breathless at times) a paediatrician saying to me what a brave thing I was doing, I simply looked at her and said ‘I don’t really have a choice do I?’ and she replied ‘There’s always a choice’.  How was there? A choice on how soon she leaves us or how she leaves us, maybe, but the outcome would be the same.  For me, giving her a chance was all I could do; we have memories, photographs and videos of her, mementoes that have to last us forever now, they are all we have.

I feel like a kite, attached to the world by a string. I float above everyone, watching them carrying on with their lives, moving forward and I’m there, watching, I’ll sometimes swoop forward, looking like I’m going somewhere and then a gust of wind grabs me and pushes me back, sometimes I let it, sometimes I try and fight it and I can push against it for so long and it may ease or it can slam me down so hard, so fast I can barely catch my breath.  Then I have to get back up again but I’m not allowed to find my feet, I’m back up into the air to watch and continue my slow, painful, spiralling journey.  What of the people on the ground? Some are desperately clinging to my string so I don’t go too far, keeping me as lifted as they can, calling messages of love and support, but not truly understanding.  Others scuttle by, their heads bowed low so they can’t see me, they don’t want to look up, face the pain, it’s too much for them.  There are other kites too.  Some just bob past, on their own journeys, others become entangled with me and we are bonded through our tragedy, our heartache, our children.  All of them bring comfort for just being there, as much as I hate that any of us are here it is always a comfort knowing we are not alone.  The strength, understanding and support gained from baby loss Mummies is a force so truly immense I often find myself in awe of it all.  How can so much love, friendship, understanding and support come from such pain? How? Our children, that’s how.  Their love for us is all consuming, just as much as if they were in our arms like they should be. As is our love for them.  That love has to continue somehow and we humans have to do something practical, so we extend our love for our babies, our children into other baby loss parents, to reassure they are not alone, what they are feeling is ok and that we are there to support each other whenever that wind of grief slams us so hard we struggle to get back up.  My daughter has taught me so much and brought so many wonderful people into my life, it is an honour to be her Mummy, I just wish she were here with me.



Tuesday, June 19, 2012

Guest Post: Right where I am: 9 months and 4 weeks

Nicole describes herself as "a thirty-something charity worker from the North East of England. Xander was our first baby, conceived after years of trying, and just when we were about to give up. After an uneventful 'text book' pregnancy, I was nearly 2 weeks overdue when I went to the hospital thinking I was in labour, only to be told he'd died in the 10 hours since we'd last heard his heartbeat. He was born silently on Tuesday 16th August 2011, just before midnight." 

 Where am I now? Not where I should be. My son should be nearly 10 months old. He should be here in my arms, not existing only as ashes in a tiny box. It’s a funny word, ‘should’. I often catch myself using it - it’s when I temporarily exist in the make believe land where my boy is alive and my life is whole and complete. Where our house is full of noise, and smells, and Jim stubs his toe on the baby things left on the floor. Where the cats run away from our little lovely boy, to avoid getting their tails pulled. Where we’ve had to move things off the bottom shelves and fit stair gates, to keep him safe. This land doesn’t exist. Our house is quiet. The cats undisturbed. Our lives are much the same as before, but forever changed.

 I think of him a million times a day. Everything reminds me of him. Sometimes that’s comforting. I can remember the love I felt when he was growing inside me and the joy I felt every day, and I feel warm and content in the memory. Sometimes it’s as far from comforting as it can possibly be. I miss him so much. I ache to hold him and I rush round the house trying to find something of his. But I’m thwarted at every turn. I have nothing that was his – nothing he touched. We bought a soft toy for him after the 20 week scan, and I sat with a couple of times on my bump, telling Jim I was letting them bond. This is the nearest thing I have to something of his and sometimes I sit with it, to try and be close to him. But it’s a poor substitute for a living boy. Sometimes I take the glass off the frame that holds his footprints, and run my fingers over the marks his feet made, desperate to touch something he touched. Nothing quite does it. Nothing can ever satisfy the need to see him, hold him, to mother him.

 I keep having to remind myself I am a mother. It’s hard to feel like one when the object of my affection has ceased to exist. I am a different mother to all of my friends. I can’t possible understand their reality, and they can’t ever understand mine. I feel separate, different. I am a freak in a world full of normals. The sense of isolation is enormous.

 I would love another baby. I hope that one day it’ll happen for us, but I’m not so sure. It took so many years before we had Xander. Sometimes I think he was our only chance at having a family, and I swear I can almost feel my heart breaking all over again. The road ahead is filled with danger – if we ever conceive again, will I miscarry? Will the baby be stillborn again? Will they die of SIDS? Will they die at age 2, or 5, or 15? The innocence of pregnancy is gone, and I can never feel it again. Sometimes I wish I could see the future, other times I’m glad I can’t – because if I knew more loss of this magnitude was coming my way I think I’d fall down dead. I worry about everyone in my life, especially my husband. If he has a headache, or a cough, or comes home a little late, I’ve half convinced myself he’s gone. I know that having one loss doesn’t protect you from another – there’s an unlimited amount of bad in the world, as there is of good.

 People ask me how I am and I say ‘okay’. I’m coping. And I am. I’m not staying in bed, not avoiding the world, I’ve not lost my mind and I’m not trying to kill myself. I’d be lying if I said I hadn’t thought about all of those things, many times. But I get on with life. Hell, sometimes I even enjoy it. I go out, see friends and family - sometimes I enjoy things so much, or I laugh so hard, that life feels wonderful. Other times I am so sad I can’t stop crying. I want to sit very, very still and hope the world goes away, or spontaneously ends without me having to do anything about it. Apocalypse? Deadly virus? Gigantic asteroid on a collision course with earth – bring it on! Sometimes I’m so mad, so filled with rage at the world that I want to kick things over, shout at people, punch god in the face, or scream until I have no voice left.

 So where am I now? I am coping. I get by. Sometimes I’m even living. But my reality is forever changed. Nothing and nobody can bring my boy back. I read somewhere that life goes on, but so does death. I know this to be true. I’ll carry the strength of his memory, and the weight of his loss, with me until the end of my days

Monday, June 18, 2012

Guest Post - Right where I am – 10 months 23 days or 328 days.


Gemma sent me a lovely email a few days ago, asking me to share her Right Where I Am post. I am always incredibly grateful for emails and connections and to share stories about this experience. Gemma lost her son Isaac to a cord around his neck. As she shares, "It's been a hard and lonely road, I must say." Hopefully, this experience will help ease that loneliness. I know it does for me. 

I had no idea where I was until I sat down and started to write; my son should be approaching his year birthday and instead he is still gone.

I’m not in a very good place at the moment – I have lived through the last year getting through; I keep thinking to myself – I’ll just make it to the funeral and it will get easier, I’ll make it through to the post mortem results, and Christmas, and new year and my birthday and now the next event to live through is next month – the date I found out Isaac had died; literally my life changed forever. At the moment I am questioning the relationship parents have with their children – it takes up lots of my energy wondering about how much is written, how much is an unbreakable bond.

I try not to focus on the bad and instead look at the good things I do have;  I have tried to embrace the spiritual side of life because it means there is a chance that Isaac is still with me in some part, it means the feathers I see are really little signs from him , each day I work on my positive thinking, and I try to be a better person. For example my father told me yesterday to be good to my husband as if anyone loved me more than he did it was my husband – and he really is my rock; I have a lovely family and some really cracking friends – the sort I can really rely on and hope will still listen to me in years to come when I am still grief stricken; and I have my horse who is my delight – I am immensely proud of him as I bred him myself, when I am with him the pain is dampened for a while – it never goes away but it lifts the fog for a time. This is important to me – it fits in with everyone’s wise advise of “Just stop trying/worrying about it and you will get pregnant again” well-meaning people who have never had a child die inside of them and have no experience in what that would mean – how forgetting about it would simply be impossible. However I am working hard to attract positive things to my life, its taking more work than I had hoped to think about good things, I’m finding it very tiring but I know it’s what I need to do. My life hasn’t changed too dramatically which means I have attracted the right sort of friend into my life – that’s a positive a massive positive and one I am grateful for each day. In hindsight those who have been the best for me  have been friends I haven’t been as good to as I should have – I hope to make this up to them when I’m feeling more together.

I am finding the stages of arrive as and when they feel like it and at the moment I’m sitting next to anger, sadness and despair – they are like a dealer I guess  always hiding and waiting to rear their head when I am feeling weak, they visit me often these days and it makes me sad to see them but yet I welcome them in like an old friend calling, I know for me these emotions are all linked to the fact I have been unable to get pregnant again; have discovered un expected fertility issues and these weigh heavily on my mind. Isaac was a miracle baby, he was my personal miracle – its having loved and carried him that picks me up and makes me smile – I did that; I made a perfect little man and yet each day that goes by that I don’t get pregnant I am a day further away from being a mother with a living child.

Much of the time my grief for Isaac is tied into my sadness about not being a mother to a living child, I know that I would cope better if I was pregnant – not that it would replace him but I miss hope – I wish she would visit me again.

I can put on my outfit and get by most of the time, I don’t like to look in the mirror since he died – when I catch a glimpse of myself I feel like I’m looking at a stranger – I just look normal and this always amazes me; to all intents and purposes I can pass 99% of the time for a normal person following my daily routine – no one would know that my child died unless they asked; and they should know, because Isaac – well Isaac was everything to us. I feel quite out of place amongst smiling happy people.

I am a survivor – I have always been one of these people that breezed through life, oh yes I had some disasters along the way but they never really stuck; I was convinced therefore that I would survive this – I would do this the right way – I embraced all the stages of grief and I have grieved openly and fully; it has since come as a shock to me that I’m still struggling – this wasn’t part of the plan and then I’m angry again. I want to grab grief and shake her (grief must be a woman; she is simply too clever and manipulative to be a man) and tell her “look lady, I’ve done everything that was expected of me – I took time off, I read books on grief, I sought support from other baby loss mothers, I’ve publically grieved, I am not afraid to cry or mourn; I accepted that my son has gone and won’t be coming back and I accepted it wasn’t anyone’s fault – not even mine. So cut me some slack and let me get on and heal” but she just waves the caveat that grief has no rules and can raise her head at any time and opens the door to let anger, and sadness and despair in again.

As I mentioned before I am currently fascinated with my relationship with my father who left us when I was very little; I’ve never minded too much about this and I have a wonderful step Dad who I just think of as my Dad; and I never blamed him for not calling as often as he should – I just seemed to accept him for who he was – oh yes my relationship with my father has been a tad tempestuous at times – and yet he has been so insightful since Isaac died – saying to me only yesterday to stop trying so damn hard to be better and that “Only I could imagine that I could get through my grief in Guinness book of records time” and “I spout the right things but I need to believe in them” and I wonder how he knows exactly what I’m feeling even when I pretend to myself ? I wonder if Isaac and I would have had that, or Isaac and his Daddy perhaps?

I wonder about the kind of mother I would have been had I had the chance; I look at my husband and I know that he would have been a wonderful father – a little too soft and easily wrapped around the finger with cute eyes but it would have been the making of him – it has been. I wonder if I would be been short tempered after a million “why” questions and know that next time I will be a better mother because I know what it is like to lose the chance.
Now I just want the chance again

Friday, June 15, 2012

Guest Post: Right where I am - 1 year and 2months followed by 1 month and 10 days


I always offer my blog as a place to share your Right Where I Am for those without blogs. Claire emailed me the other day, asking if I would oblige. Happily. Claire describes herself as a "wife, angel mummy and teacher from Scotland with four losses. Molly born sleeping April 2011, Grace born sleeping May 2012 and two little stars lost at 6 weeks." So grateful to welcome Claire to still life with circles. 

At this moment, I don't know where I am anymore. Back at the beginning of a nightmare and doing it all over again I guess.

We faced Molly's first birthday in April knowing that her baby brother or sister was fighting a losing battle inside me against the same condition that took Molly from us. Four weeks later, we buried Grace alongside her big sister. I have now lost 4 babies. Molly, Grace and 2 little stars lost in early pregnancy.

So I am back in the early days of grief. Once again, my confidence is gone (although I don't think it ever properly came back after losing Molly). I am afraid to leave the house. I am afraid to face people - they'd rather not be faced with me anyway. A stark, sad reminder of something they would rather not think about. The guilt is overwhelming - I feel like such a failure. I feel that I have let everyone down, especially my husband. He would be a wonderful father. I watch him with my niece, who adores the ground he walks on, and it breaks my heart. Even amongst friends I have met on this journey who have also lost, some of them don't know what to say to me as they just cannot imagine having to life through the nightmare again.

I sometimes feel I am living an out of body experience. I do things, go places but I am not really there. I tune out, I can't always cope. I still don't think I have fully let myself realise that I am going through this again. If I stopped to think, I don't think I would start again. I have become so good at putting on a face. People tell me I am doing so well, that I am strong and brave. I don't feel it.

I try hard to count my blessings every day now. My wonderful husband, our supportive family, my friends, new friends met on this journey of loss, my sands group... I am lucky to have these things. I have met so many brave and inspirational women on this journey who have lost children in many different circumstances and who, instead of drowning in their grief, have used it to support and reach out to other women. This inspires me. Supporting other women in this situation has helped me. I was sent a poem last week written by a mother who lost her child recently and who I had reached out to. Instead of thanking me, she thanked my girls - because of them their mummy was able to offer empathy, support and advice to another bereaved mother. I loved this. It meant my girls had meaning to someone else. Last week also, a fellow bereaved mummy and wonderful friend, wrote my girls' names on the beach in Costa Rica. I love it when someone thinks of my girls, I love to see their names, to hear their names. These things mean so much to me.

My hope is still flickering somewhere and I really don't want to give up but I think another loss would destroy me. Nobody can say to me anymore that 'it'll be alright next time', we lost our next time. I can't give up though, I want so much to be an earth mummy. I don't want my girls to have died for nothing. Without them, we would not have met such inspirational people. People who have now given us access to research which shows a way forward for us. Strong women who, after many losses, now have healthy rainbow children in their lives or are pushing forward with the strong belief that their rainbow is on the horizon. I am trying to cling to this, desperately.

I look out for my girls and I see them... in rainbows, sunshine, stars, little coincidences. I feel them still and, though I miss them dreadfully, I find comfort in knowing that they are still with me in my heart.

A friend once said to me that losing your child was like walking in mud. Some days the mud is thinner and you somehow manage to drag yourself through it. Other days, the mud is so thick that you are stuck and can't move...... the thick mud days hurt your heart even more.

Right where I am... stuck in the thick mud and looking for a way forward.

Thursday, May 31, 2012

Guest Post: Right Where I Am- Three Years, Six Months, Twenty-Seven Days and Two Years, Four Months, Four Days


It is my honor to welcome a guest post for Right Where I Am from Danielle. [Remember if you do not have a blog and want to contribute, you are welcome to post right here. Send me an email at uberangie(at)gmail(dot)com.] My dear friend Danielle's first son Kai died a month and a half before Lucia. Danielle lost her second son a year and two months later. This year, Leap Day to be exact, Danielle gave birth to her third son, an incredible little Monkey full of contented joy and love. This week, Danielle emailed me with her contribution to the Right Where I Am project. Her insights into grief and her journey last year are right here.  --Angie

My son is three months old.  He wriggles. He coos.  He smiles at us all the time.  He smiles so much that when he eats, milk dribbles from his laughing mouth and wets us both.  He loves it when I sing- ridiculous, composed-in-the-moment songs about Mickey Mouse socks and poo.  At least once a day I sing through a throat choked with tears, because he is here.

When my grandmother, made Great-Grandma at long last, came to meet him in the hospital, she brought me a baby book to record my first memories of our time together.  It sat on a shelf for the first few weeks, all but forgotten in the sleep-deprived haze of new parenthood.  When I finally opened it,  his brothers were there on every page.  What we thought when we found out we were having a baby: Please don’t die. Who we told first, and what they thought: I didn’t use the word pregnant until the third trimester.  Everyone was terrified, but too polite to say so. What we thought when we were waiting for you to be born: Please don’t die.  Siblings waiting to welcome you home:… Suddenly, I could not write.

Our grief is very quiet these days – overshadowed by the newness and the unbelievable, heart-expanding joy of having this amazing little boy to love. Right now, in this moment, I am happier than I can remember being in years, or maybe ever.  I am falling in love with my husband all over again, as he asks me daily if I think this boy will ever be too old to let Daddy hug and kiss him.  My heart is light as I dance around in circles with my son in my arms.  My son.  Right now I have everything I have ever wanted.

Except them.

The other day I asked my husband if he felt healed, now that Monkey is here.  He didn’t hesitate.

“No.  No.  I just don’t have time to think about it as much.”

And yet we do think about it. It’s in the way we introduce ourselves to the other new parents in the neighborhood, where one or the other of us mentions every time that we had a long, long road to get here.  It’s in our daily conversations about whether we have it in us to risk trying for another living child- ridiculous conversations to be having 13 weeks in, but conversations that feel so urgent, so necessary.  It’s in our amazement that friends, expecting a son in July, are willing to decorate their nursery and take our hand-me-down onesies, believing without question that their child will come home.

He is here.  His brothers are not.  He is here.  We went to hell and back to get him here safely.  To get him here at all.  He is here.  There will likely be no others.  He is here.

For the first time in a long time, so am I.

Wednesday, May 23, 2012

right where i am 2012: three years, five months, one day.

Last year, I launched a project called Right Where I Am where I asked other babylost parents to write about right where they were in their grief. And it also was about how wherever you are, it is right. I asked people to only talk about the present moment in their grief, not where they were yesterday, or tomorrow, but how they were feeling today. I asked each person to title their piece with Right Where I Am: followed by the time since their child or children died. Here is last year's post. One hundred and seventy-nine people wrote about right where they were. It was more than profoundly interesting. It was beautiful, heartbreaking, lovely, powerful. A few people asked me if I was going to do it again this year. I hadn't thought about it being an annual thing, (and maybe it won't be,) but I thought that it would be interesting to do it again this year. It feels good to do an inventory, I think. I found it fascinating to read last year's and compare where I was last year to this year. But also just to think about what grief is like for me now, and what I am wrestling with these days. Also know that if you are new to this community, we want to hear your story too.  I hope you decide to join in. I know I found many amazing blogs last year, and read the majority of the posts. I tried to comment on them all. I know a few people did too (Catherine W. and Sally, I'm looking at you two.) If you do write, post your link in the Mr. Linky below. Feel free to ask questions in the comments, I'll answer them as soon as I get them. 


Last night, I putzed around my house, cleaning things, nibbling on fruit left in a bowl by my children. I turned the television on, sat for a moment, then off it went again. Nothing to watch but a documentary about the ex-Amish that I've already watched. I drew a bath, and poured some patchouli bath salt under the faucet, the pungent smell overwhelming the bathroom. I opened a window so a small breeze blew over me. I moved my seven day votive candle to the rim on the bathtub. I started burning one three weeks ago after I found out our new baby might be dead. I prayed to Mother Mary and lit a candle to her. The baby was dead. I don't blame Mary.  I thought I should give prayer a shot even though everyone already knew the baby was gone. And besides Mary is there for grieving mothers, I hear. This is the third consecutive candle. I remember burning candles all night and all day too after Lucia died. The light felt like a physical presence in the room--warm and alive, changing with the conversation. I listened to the local npr station and stayed in the scalding hot water until it grew cold and I was shivering.

I have only cried a few times since I lost this latest pregnancy. A twelve week miscarriage, but she seems to have died weeks earlier, if she ever lived. Some days, I feel too busy to grieve and be sad. And besides, I think, "This baby isn't Lucia." even though I loathe comparison grieving. But this loss reminds me of Lucia's death, not because it was the same. It was completely different, but it reminds me of how much I wanted someone so little who was destined to die. It reminds me of feeling hope and innocence, but then meeting death. I expected death this time. I hate to say it made it easier, but it did. I survived my daughter's thirty-eight week stillbirth, gave birth, lost my friends, lost my way, refound it, made an incredibly large amount of new babylost friends, found something like a spirituality and compassion. I found myself in the wreckage of my daughter's death. Myself strong and capable, weak and full of fault, slain but resurrected. Myself human. All human. I forgive myself for my humanity now, rather than torturing myself over it.

I opened the cabinet to brush my teeth and my gigantic knock-off G-Force digital watch was in there. It was making colors--green to red to blue. It wasn't doing that before the bath. In fact, it has never done that. The darkness enhanced this beautiful show, like the aurora bourealis over the Crest toothpaste. "Hello, my little love," I said, unafraid, "My Lucia, my little Buddha. Mama misses you." I shut the cabinet door.

I allow her to be part of my life now.

That is something new about year three. I invite Lucia into my world. I let myself see signs of her, to remind myself that we are small in this universe. There is dew and moss and the Grand Canyon. And my baby died. It was a minute blip on the radar of the universe; an atomic bomb in our little family. And so, I can allow her to keep coming to us, in whatever way we want, simply because it is comforting. I tell myself it is okay to search out comfort in our world. To pray to something bigger than me. I disallowed prayer in my early grief, because I felt like a hypocrite asking for God's help when I was suffering. I pray for big things that seem small, like patience and gratitude and humility. Year three has given me permission to believe there is something beyond what I can see in my everyday. That maybe Lucia is around me, and I still don't call her an angel.

See, peace in me used to translate in my brain to peace in her death. I think I integrated her death in such a way now that I understand I can have healing, comfort, hope, love, happiness, serenity and peace and it doesn't mean that I am healed, or comforted from her death. It means that it can still piss me off that she died. I am still sad when I focus on it, but I choose to focus on the joy that she lived at all. It seems miraculous that anyone lives. We are so vulnerable and delicate. Creatures built for death. Lucia taught me that. She taught me about impermanence. I am grateful for the lesson.

I reread my post from last year, and I can see the growth of that peace. Things and people can still upset me. The crazy chatter in my brain still sounds like Ornette Coleman, but it is quieter. It is a constant upkeep to remain in a state of gratitude, but I want that serenity. This miscarriage, not yet even a month old notwithstanding. We grieve this new loss in a new way. The children particularly, but we also feel happy. We seize the happiness when it comes, because we lived with happiness guilt, and it is a pointless, ridiculous guilt. To be happy and grieve is a dichotomy we have become very comfortable with. I think most babylost families live in that place of continual happy-sad.

Honestly, my biggest grief-related issue right now is this space. I fear that I do my readers a disservice. Women and men who find me after they have just lost a child. Who have grieved for a day, two weeks, three months, for six months, for a year, for ten. Perhaps my grief resonates, and it is true grief. But I edit my grief. I massage the words. I clean it up, make an analogy. After a long, winding life, I kill the analogy, then I resurrect it and make a holiday in its name.

I want to tell the people who read here that I write and edit and think and cajole and explicate and outline and rewrite and giggle. But I don't cry much. Does that matter?  Does it matter that I don't cry? Does it matter that I run into the office after dishes, the linen towel still tucked into my jeans, as I wipe my hands dry, and type something about being eviscerated because Lucia died, or write something about the moon, and then go do the dishes again without shedding a tear?

Mired-in-grief is not what three years, five months and one day from Lucia's death looks like for me. Three years isn't all grieving for me. In fact, it isn't grieving at all. Not in that active-not-being-able-to-breathe way. It is not grieving in that I-cannot-live-with-this-knowledge-and-I-cannot-die-because-of-it way. It is not the grieving in that not-being-able-to-function-or-answer-the-phone-or-go-for-a-walk way or the I-can't-get-out-of-bed way. It is the hear-a-pregnant-lady-say-'what's-the-worst-that-can-happen'-and-know grief. Grief became so apart of who I am that it changed almost nothing. Or rather it changed everything about me except me. Or rather, maybe I should say, everything stayed the same but me. I don't know. I feel like a new species--a griefasaurus. I have this life now. It is the only life I can imagine, and it involves Lucia dead. And it isn't a sad life. Bloody fucking hell, I miss her. I miss what our life almost was, and didn't get to be. But I have a beautiful life. A happy family. Joy and running and laughter and Lucia is dead.

Grief now is a moment of my week. In the first year, I'll be honest, a moment without grief felt like a victory. That was the moment I wrote about on my blog, now grief is the moment I write about. But then, because I write a blog about grief, and I write here every week, or twice a week, I write that moment down. I massage it, cajole, edit, kill the analogy, you know, like I said before. And since I write about grief here a few times a week, it seems like I am always grieving, crying, catching my breath, thinking of clever analogies for death and grief and authenticity. That is why I fear it is a disservice to keep writing.

But the truth is I need to write to her, about her. About nature and God and how it intersects with grief. I feel like I am learning so much now. And it is different than learning to live without her. I know how to do that. I wrote about that for two years. I wrote about it because I was learning how to live without my daughter, and how to live without the friends I thought I had, or the safety I thought was afforded me, or that kind, compassionate person I thought I was (apparently, I wasn't that kind or compassionate.) Now it is learning that because she died, the world became more beautiful, because I have hell to compare the world to. I am alive. I have two living children. I don't take any moment of my life for granted. I know the other way.

I wake up and meditate and pray and drink coffee and play and breakfast/lunch/dinner. And I don't grieve in there, not in the way grief was. It was a full-body, all-encompassing physical affliction. It was active. It was debilitating. Keening was a contact sport. Her death is part of the fabric of my life now. It happened. I wove it in, beaded it. It isn't still happening, though it was still happening for the first eighteen months. (Does it help to know there was an end to the active grief? Does it help to know it lasted for 18 months for me? And random days now?) Now, she is just in everything I do, a part of it all, and also, I don't mention her to the earth people. Well, not much. That is one thing that has changed too this year. I don't say that I have three children anymore.

I feel like I have to confess that. That seemed horrifying to me after she died. To deny her to strangers, or even family I haven't seen. But I realize now that it isn't denying her. I just say two, because Lucia isn't an anecdote. She isn't casual conversation. She is my love, not my statement, or my eff you to a society who can't deal with daughter-death. And I still miss her.

:::

Now, it's your turn. Where are you in your grief? Emotionally. Physically. Psychically. Spiritually. You can compare your journey from last year's post (don't forget to link last year's post to this years.) Title your post, "Right Where I Am 2012:(Time since your child's death)" then come back here and link your blog post on the Mr. Linky below. Click other participants and read about right where they are. Comment if you can. Just a thank you for telling me about right where you are. If you don't want to write a full post, why not just comment here and tell me the time since your loss(es) and anything else you want to share. If you do not have a blog and are a regular reader, you can post your essay on this very blog as a guest writer. Send me an email at uberangie(at)gmail(dot)com. Spread the word around the community by linking back to this post, so people can find out what grief is like on all stops on the road. 

Wednesday, June 1, 2011

Guest post: Right Where I Am: 2 Years, 6 Months, 28 Days & 1 Year, 4 Months, 5 Days


It is my great honor to welcome my first guest post on still life with circles. Very early in my grief, Danielle and I began exchanging emails. She was and still is a frequent commenter on my blog and several others in the community. Her insights, wit, compassion and kindness instantly drew me, and many of my friends, to her. Her first son Kai died a month and a half before Lucia, and we quickly began writing long emails to each other about where we were in our grief. There is a respect and love between us that makes it easy to be friends even in the hardest of times. And there have been hard times. Danielle lost her second son a year and two months later.  Sometimes, in our friendship, when those moments get too hard and things are too sucky, we just read a book together, and that helps me more than anything I could imagine. I feel privileged to call her my friend.

Despite many of our urgings, Danielle does not have a blog. I definitely understand her reasons for needing that privacy. On more than one occasion, I have extended my blog to her to write about where she is and to process things. But she never bit. This week, however, she emailed me with her contribution to the Right Where I Am project. Her insights into grief and her journey in particular are touching, hard and important. So, I thank her from the bottom of my heart for sharing right where she is with us all.


I am on an airplane with my husband. In my carry-on are two books, a candy bar, the work I will not do, alcohol wipes, a syringe, and medication wrapped in an ice pack. In a minute, I will have to wake up the sleeping guy with the headphones so I can go to the bathroom and inject myself in the leg. I can’t quite believe I am doing this again, doing this still. Though I am pretty adept at the whole shot thing, I don’t quite trust my aim if there’s turbulence.

It’s been over three years since our first appointment with the reproductive endocrinologist, followed two weeks later by the minor surgery that I thought of then as the hardest thing I would ever have to do for us to become a family. In total I was under anesthesia six times in two years, landing in the emergency room or reeling dizzily for weeks afterwards each time. Counting acupuncture, blood draws, and the four rounds of DIY injections at home, I have been stuck with hundreds of needles. We have spent close to a college tuition for the child we do not have on fertility treatments, herbal supplements, therapy for me, therapy for Alan, therapy for us. We have conceived, lost, and mourned two sons. We are still not a family.

Right after we lost Kai, the fact that the world kept going while my own life had gone off the cliff was more than I could get my head around. I developed an intense, personal hatred of people carrying coffee cups from Starbucks, because they were FUCKING DRINKING COFFEE while I was standing next to them, shredded, on the subway platform. I stopped answering the phone, because questions like “How are you?” and “What’s new?” were impossible for me to answer except through the lens of grief. I developed a one-shouldered shrug, which I used to respond to any question about what I wanted to eat, do, talk about. I screamed and cried myself hoarse in the shower. And on the day we were told that we would never know what happened to Kai- that there was no answer except “likely sublinical infection” (read: black magic)- I wanted to die.

I could tell you the story of how it slowly got better, because it did. I could tell you that while I was in the very hardest and ugliest phase of my grief, I also went to work every day, formed new friendships, went on vacation. I could tell you how possibility came back, a little at a time, and carried us through a whole new set of fertility issues and straight through to IVF. But then I would also have to tell you the story of Chip. He brought light and hope back into our home from the day we knew he was coming until the day we knew he wasn’t. Chip was diagnosed with trisomy 13- a 100% fatal genetic disorder. We said goodbye at 13 weeks, and I went immediately from numbness and shock to white-hot anger. I am married to an extraordinarily kind and patient man. If I weren’t, that anger would have burned our marriage to the ground.

Some days the grief about our children and the grief about our infertility are one and the same. Some days I miss them separately and specifically, for different reasons- our two sons, and the embryo we fell in love with too soon who never turned into our daughter. Some days that missing feels like rage, or fear, or disgust with myself. Sometimes it feels like compassion for Alan, who didn’t get to be the wonderful father he was made to be, or for my mother, who keeps Kai’s ultrasound photo in a frame at her bedside. But mostly I just wish they were here, and I am sad to realize as I write this that I have no real idea what my life would be like if they were.

There are other things now, things that are not grief and anger. There is gratitude- for health insurance, for extraordinary women from different parts of my life who have offered to serve as egg donors or gestational surrogates, for friends who actually seem to like me this way. There is wonder- at big things like waterfalls and small things like figuring out the trick in the Sunday Times crossword. There is wistfulness- for once-cherished friendships that didn’t make it, for the part of me that used to care passionately about supporting Latino playwrights and visiting my grandmother, for a time when I truly felt like a part of this community in a way that I no longer do. There is release- in near-hysterical laughter, in dancing, in the love of my husband. But there are no children. There is no family.

I am OK most of the time. I care about people other than myself again. There are things I want to do, and when I don’t do them it’s because I don’t have enough time or enough money, and not because they don’t matter. If you had asked me at any point along the way, I would have said that I could never feel this OK again. I was wrong. That said, OK is not happy, and I don’t think I will ever be truly happy without a living child. I hope I’m wrong about that, too. I hope I don’t have to find out.

--Danielle

Wednesday, May 25, 2011

Right Where I Am Project: Two Years, Five Months.

ATTENTION: Reader Readers, the post includes the project I mentioned a few months ago, the one where you talk about right where you are in your grief and what it is like now, so new people can get an idea of the experience of grief further down the road, and so people further down the road can reflect on how far they have come in their grief.

"I want to write about Lucy, but I feel lost in all that I have said in the last two and half years. Haven't I said it all already? She died. I grieve. I don't know. What do you think I should write about?"
My sister looks down at her tea and back up again. "Don't ask me. I think you should write about dragons."
"Dragons?"
"Yeah, dragons."

"Grieving dragons?"
"No. Angry ones. That breath fire and whose eggs are magic."
"You are a thirty-seven year old woman."
"I still like reading fantasy stuff. Why did you ask me?"
"I don't know."

Sometimes I want to write about her, there is a longing to connect with her, but I just don't know what to say. I feel like I have written everything one can write about a little baby that lived for 38 weeks, in my belly, and then died.

And so, today, longing to write about her and my grief, I impulsively decided that today is the day where we should share about our grief, right where we are, right now. I mentioned this a few months ago. That maybe we should write about what it is like on the road of grief--from the earliest stages to the ones further down the road. So, here it is. I don't want it to be a bunch of posts where people say, "It gets better. Just wait." But rather posts where you just talk about where you are right now in your grief, and the daily ways in which grief rears its head, the things you can do now that seemed impossible, the obstacles you are facing. There is a Mr. Linky at the bottom to connect here. Please title your blogpost: Right Where I am: (Insert the Time Since Your Child's Death). Look at mine above. You can use the comment section of this post if you don't have a blog yourself. And please comment here to let me know if you are participating. I hope you decide to join in.


:::

After two years and five months, I still feel sad about Lucy's death. It is heartbreaking. I imagine I will always be sad. It sometimes comes out of left field, and sweeps me up in a moment. I cry and then get back to whatever I was doing. It comes in pockets of suck rather than a glue leisure suit of suck that sticks to my form for days until the sweat and tears loosen it. It still comes when I think of what we have been through in that remarkably short amount of time, or see another two point four year old child with dark hair and blue eyes, or I see sisters just 20 months apart in age playing together or just when I push that particular hurt because I want to mother her and I don't know any other way to mother her than to paint and cry.I guess my point is that it doesn't knock me out all day. It is just a moment in my day.


I have integrated her death and life into our lives. My daughter talks about her, and I answer without crying. We have Lucy rituals and certain things that were Lucy's in our every day life, like a towel I bought for her that she never used. We still call it Lucy's towel, and Beezus asks to use Lucy's towel and it is fine. It is more than fine. I like that Lucy can lend something to Beezus. That makes me feel comforted rather than creeped out. I couldn't have imagined that two years ago. This paragraph might have been the creepiest paragraph I could think of two point four years ago.

Yesterday at the market, the cashier remarked on how much Thomas looks like me. Almost as much as Beatrice doesn't. Genetics are funny, huh? We all laughed. And I thought about what Lucy might look like with her brother and sister. Who would she look most like? What kind of remarks would she get? Maybe she would have been the dark-haired, blue-eyed middle ground. I fell into the 100-yard stare and didn't mention that there was one in the middle. It didn't seem right to drop the dead baby bomb in middle of some small talk. It was awkward whether I mentioned Lucy or not, because I fell into a trance, staring in the middle space between focusing and not focusing, right above the head of the cashier, remembering her nose, her hair and everything that was as impermanent as her. My eyes might have welled up a bit, but I didn't weep. She would have turned into a baby that looked nothing like the picture I have of her, and yet, her face is permanent now, fixed, in a newborn state. My eyes moved my head from one to the other. Where does Lucy fit? Where do I fit? Not even in the most benign of conversations, or situations. I still don't fit back into the life I once had. That is okay, though, because I created a new life that I love.And so that is it. I fit into this life. It isn't the same. And somewhere in the past two years and five months, I abandoned that idea of my old life, and the new one, or what things should be like. This is the way things are. And truthfully, I made a good life despite Lucy's death, not because of it.

That is what grief is like for me now. My life is good. It is beautiful. Lucy gave me many gifts. I can say that now. I can feel gratitude for her and the way she taught me about love. My life is also completely different than two years, five months ago. I write about grief and parenting. I paint most days, or create something crafty and/or artsy. I light candles on an altar of babyloss that I have. I have a whole new set of people I go to when I am sad or happy, even. They also lost babies. Who I am on the blog is pretty much exactly who I am in my daily life, in the same way that talking to a therapist is pretty much exactly like I am in my daily life. I don't go around wearing my heart on my sleeve, but I am honest. Most of my friends from before don't email me anymore, or call. I am okay with that. They did what they needed to do, and me too. I am not bitter about it anymore. Or about much anymore. There are certain hurts, but mostly, I take life right where it is right now. I don't expect people to be there for me anymore, and in that way, they never let me down. That sounds depressing, but it is very liberating.

When I was in the market, I felt like someone recognized me. Not from another life, but from this one, the on-line one. She pointed and whispered and smiled, but said nothing. And I wondered if she knew me because her child died. It was a strange feeling, not unpleasant, but strange. Another moment when I remembered that Lucy died and that things are different, but again, that moment didn't floor me.

I feel lost with the people in my every day life. When I interact with this loving, supportive, compassionate community, and the other one I developed in the last few months, I am finding it hard to deal with the cattiness and weirdness of interpersonal dynamics among people who haven't walked through hell. I guess I have been thinking a lot about blogging and what drew me to put my private life out there so publicly, particularly the grieving, vulnerable part. I felt like reading about other people grieving and processing in the early days, it saved my life. Maybe precisely because I am not that emotive in real life. I hug. I express gratitude. but I don't express my vulnerability well. I can't ask for help comfortably. Being a crying, grieving wreck was a particular kind of hell, like a condemnation of some Greek God of emotion, or something, but it was also good. I learned to ask for help, be vulnerable, know my limitations. Some events I still cannot go to, and I forgive myself about that. I became disciplined with my writing, and my life. Writing here was a way to be emotive without sitting with someone's pity. I can't stand pity. I realize now that at times in the last two years I confused pity with compassion.

I did the best I could at the time.

That is something I can say is a huge sea change. I wanted to be the best griever in the beginning. Appearing strong, brave, resilient, but then I crumbled onto myself, and beat myself up. I don't beat myself up nearly as much as I used to. I really did the best I could, even at my worst moments. At two years since her death, I don't need this space as much to process my emotions, but I still need it. I love talking to grieving women. Lucy's death brought all these amazing women into my life. And when they came into my life, I learned what it is to have a community of people like me. I stopped being Latina, or fat, or athletic, or itchy. I was just this set of emotions on a screen, and that felt/feels authentic and right. I feel normal here, and weird out there. Because the shell of me is not me. Lately, I have felt gawky and outsiderly in my day-to-day life. Maybe because I am not drinking, and I am a stay-at-home mom, and I am a writer who observes people and I don't know anyone else like that in my neighborhood. I have been cut out of my neighborhood activities lately. I see the posts on FB, but then I'm not included. I feel soul sad about it, because my neighbors have always included us. I can't, for the life of me, figure out what we did. I don't know why, but I find myself responding in the same way I responded in seventh grade--to cry, feel bad about myself, and demand that we move away from this place as soon as possible. Then it occurred to me that people in my real life might be reading my blog without telling me. I have talked about a lot of heavy, hard shit in the last five months. Stuff that might keep people from asking me to parties.

I have read about this happening to other people. I remember from my early days reading about it with people years out. When their real life peeps into their online diary, and then have things held against them. They went private or password protected or went anonymous with a new blog name. I don't know how to deal with it, because I never thought I would care or not be able to just ask someone if they were reading my blog. I don't want to ask now and draw attention to my blog, and on the other hand, it feels like a violation if someone is reading about my emotions on a day to day basis. And that is just it. In the beginning, I didn't care if people read because I knew that grief was trumping everything. Now that people expect me to be normal again, I can't quite figure out why I ever thought telling anyone about my blog was like a good idea. And yet, I have come to rely on this space. So, that is the awkward grief place I am at now. I don't mind if people in my day to day life comment, or let me know they are reading, it is the awkward place of me not knowing what everyone knows. If they read here, they know way more about me and my weird hiccups in life than I know about theirs. It feel unsafe sometimes. It makes it sound like I dwell in grief, but this is the place I process that part of my life. And it is so important, I can't give it up. Blogging is strange, because the temporary feelings become permanent, and little dalliances with the annoying take on the gravitas of epic angers. Nothing is ever permanent with emotions. Nothing, except people can pull up a specific blog post and say, "But you feel like this."

I have had a subsequent baby since Lucy died, and think about another here and there. I think I romanticize the pregnancy of my "before time," not Thomas' pregnancy, which was insanely difficult for me emotionally. And sometimes I think that more time between Lucy's death and another baby will make it easier, but then I know myself too well. So probably not another baby, but sometimes I entertain the thought.

All in all, I have a good life now. I miss Lucy every moment of every day. It has become part of my being, the missing, but my writing and art involves her and connects me to grief which connects me to her and that feels right and good. I love hearing from babylost mothers just coming into this community and those who have been around for a long time. Quite often, someone will comment on my blog in the first weeks/days after their loss, and I try to respond, and get a no-reply email. Then, they like never comment again. I am sure it seems like I don't care, but I do. I did the same thing in the beginning of my blogging experience, just because I didn't really understand all the ins and outs. And I thought I was too new to talk with if someone was years out. But on this end of things, I can only say that I just miss comments sometimes, and am not terrific on follow-up if it isn't easy, but I want to talk to everyone directly. I pull something from each comment that comes in. I don't email directly with very many people, and I love emailing and keeping in touch that way, so hit me up, if you want. I also am on Facebook a lot, and Twitter here and there. I am on google chat  and am available on skype. Email me and we can chat. I don't mind talking on the phone anymore. Just know that you are not alone. Lots of times in the early days I felt so lonely I thought I would burst. I thought that I would like to die from the pain, though I wasn't suicidal exactly. I just wanted it to end. I don't feel like that ever anymore. If you want an email back, leave either your email, or comment with a respondable email, or email me directly at uberangie(at)gmail(dot)com. I read lots of blogs and love to add new ones, so leave yours for me. I'll add it to my reader.

:::

Now, it's your turn. Where are you in your grief? Emotionally. Physically. Psychically. Title your post, "Right Where I Am:(Time since your child's death)". then come back here and link your blog post on the Mr. Linky. Click other participants and read about right where they are. Comment if you can. Just a thank you for telling me about right where you are. If you don't want to write a full post, why not just comment here and tell me the time since your loss(es) and anything else you want to share. Spread the word around the community by linking back to this post, so people can find out what grief is like on all stops on the road.