Showing posts with label SADS. Show all posts
Showing posts with label SADS. Show all posts

Wednesday, March 25, 2009

A Chapter Closed.

Monday, I closed a chapter of this life.

We finally met with the Maternal Fetal Medicine (MFM) doctor to go over all my test results, the autopsy, the bloodwork...Of course, my midwife had called to talk me through what she knew when she got the preliminary autopsy results, and we had a copy of all our records, which I poured over trying to find anything to explain why Lucy died. As my midwife put it, "There was no smoking gun." No infections. No chromosonal issues. No placenta incidents. Nothing. But this cycle of tests, waiting, results, repeat, was growing old. I felt nauseated from the roller coaster ride. One day, the midwife told me there was a placental infarction of 8%, consistent with the car accident we were involved in in October, and then the next week, my friend (a high-risk OB) would tell me that placental infarctions don't affect the baby until it is 70%, and death would be over 80%. So, I would prepare myself for the next result, the possibility they could tell me something so I could prevent another dead baby, and then I would come crashing down...nothing. She simply ceased.

Still, having known and been mentally preparing myself for the diagnosis that my perfect baby just died, I was still incredibly anxious about walking into the MFM office for further information. I had known people to get different information. More in-depth reasons for their baby's death. I just wasn't strong enough to learn anything new. And well, when I really examined why I was so very anxious, it wasn't that I didn't want to learn new information about Lucy's death. I did. I wanted to know why this happened. It was simply I didn't want to learn information that indicted me. I had the fear that I would sit down and he would say, "Sorry, Angie, but it was your fault." I mean, how could I not realize I was harboring this deep guilt? I was afraid he might tell me that my weight gain caused her death. Like he would sit down and say, "Yes, pasta killed your baby." Or maybe he would say it was my inability to give up sushi for most of my pregnancy (there I said it!), or the glass of wine I allowed myself every so often.

But he didn't say that. He said he was so so sorry. He said that these cases are most frustrating. He called me "healthy" five times. Me? Healthy? Before December 22,2008, I would have said, "Yeah, so?" But now, I didn't realize how much I needed someone to call me healthy. All these tests and a dead baby, and I thought I was unhealthy, diseased...I wanted to kiss him, and lay my head on his shoulder and cry, "Thank you for calling me healthy." He said I did everything right. He said my chances of having another stillborn baby were the same as before. (Actually, that part wasn't comforting at all.) and when he was talking about what would happen if we got pregnant again, it was the first time since Lucy died that I remembered the excitement of having a baby, of trying to conceive, of going through labor...but I am still not exactly there yet. I just realized that I entertained an idea I also thought was dead.

I walked out of there feeling lighter, like a huge weight had been lifted from my shoulders. I am honest when I say I didn't consciously ever think I could have done anything differently in my pregnancy. The closest I got to blaming myself outright is that I often thought that stress took its toll on my baby. I blamed the stress of a car accident, a falling out with one of closest friends this fall, and a broken collarbone which all happened at the same time while my father-in-law was battling lung cancer and I was trying to care for my 20 month old, and prepare for Christmas...it very quickly darkened the happiest time in my life. I felt so alone during that time...I thought maybe my stress caused her to suffer too. But I didn't realize I was blaming myself for specific things I did in my pregnancy. As I virtually skipped out of the MFM appointment, it was clear that I had.

Now, I just need to really work on wrapping my brain around her death. I have tried to come to peace with this place of no resolution. But honestly, this will remain my biggest challenge. As a science-loving, non-religious mama, I am trying to come to terms with the death of my child for no discernible reason. Adults don't just die for no reason. Why do we tolerate this? I have tried to equate it to SIDS in my brain. In fact, in my quest to make sense of it, I came across this term: Sudden Antenatal Death Syndrome or SADS. Still, finding a term doesn't bring a sense of peace. It just doesn't. Someone named a no-reason. But hey, sometimes I'm up for grasping at straws too. But whatever you name it, it still remains the same--My girl is gone. She just died. In me. For no apparent reason.

Geesh.